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Qualitative Validation of CSAMI-A as a Primary Outcome Measure in Cutaneous Sarcoidosis Trials

1.Are you a resident of the United States?(Required.)
2.What is your age?(Required.)
3.Have you been diagnosed with cutaneous sarcoidosis with a skin biopsy?(Required.)
4.Are you currently experiencing CS skin symptoms and have been for at least 6 months?(Required.)
5.Are you currently being treated by a dermatologist, pulmonologist, or rheumatologist?(Required.)
6.Are you currently receiving systemic therapy (e.g., antimalarials [hydroxychloroquine], tetracyclines [doxycycline], oral immunosuppressants [corticosteroids, methotrexate, mycophenolate mofetil, azathioprine], or intravenous medications [adalimumab, infliximab])(Required.)
7.How would you currently describe the severity of your overall CS skin symptoms?(Required.)
8.Have you been diagnosed with a skin disease other than CS that you feel is medically important and has potential to confound assessments (i.e., interfere with your ability to report only on your CS disease experience)(Required.)
9.Is your cutaneous sarcoidosis solely subcutaneous (i.e., lesions of sarcoidosis that are solely “underneath the skin” and are not accompanied by changes in the color or texture of the skin)?(Required.)
10.Are you pregnant?(Required.)
11.Are you currently participating or have you participated (last 4 weeks) in a clinical trial with an investigational drug?(Required.)
12.Are you an employee of, or relative of a member of Priovant Therapeutics or CERobs Consulting?(Required.)
13.Do you have access to a computer or laptop computer with the ability to easily receive email?(Required.)
14.Are you comfortable speaking, reading and understanding English?(Required.)
15.Are you willing and able to participate in a 1:1 telephone interview lasting up to 1 hour?(Required.)
16.Are you able to provide written informed consent to participate in this study?(Required.)
17.Are you willing to have the interview session audio recorded?(Required.)