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FXAA Community Feedback 2026

Fragile X Association of Australia (FXAA) supports people with Fragile X-associated conditions, their families and carers, and the professionals who work with them. We provide information, connection, education, counselling, peer support and advocacy to the Fragile X community across Australia.

At the heart of our work is a simple belief: people living with Fragile X deserve to be understood, included and supported to live their best possible lives.

We want to hear what matters to you.

Your ideas and feedback are important to us and will help guide how we support the Fragile X community into the future.

We welcome your feedback on:
• what you value about FXAA
• what is working well
• what could be improved
• where you think we should place greater focus

You do not need to have used an FXAA service or participated in an FXAA activity recently. The survey will take around 10 minutes.

If you would like assistance completing the survey, contact Wendy Bruce: wendy@fragilex.org.au or 1300 394 636

Your responses are confidential.
1.Please tell us about your connection to Fragile X...
2.Which state or territory do you live in?
3.Which best describes the area where you live?
4.What is your age group?
Your experience of FXAA
FXAA provides a range of programs and activities to support members and the wider Fragile X community. These include information, connection, education, counselling, peer support and advocacy. The following questions relate to these areas.
5.What do you value most about Fragile X Association of Australia?
6.How important do you think each of the following is as part of FXAA’s work?
Not at all important
Somewhat important
Extremely important
N/A
HelpLine
Ongoing phone or email support with FXAA
Counselling Support
Peer support groups facilitated by FXAA Counsellor
Opportunities to connect with others in the Fragile X community
Webinars
Online resources (FXAA website, video library, podcasts)
Social media (Facebook groups, Instagram, LinkedIn and Facebook pages)
News updates (newsletter, email updates)
Education on Fragile X syndrome for disability support workers, therapists and educators
Face-to-face gatherings and events
7.If you have used or participated in any of these services or activities, what was helpful for you and what could be improved?
8.Overall, how well do FXAA’s current services and activities meet the needs that matter to you?
Not well at all
Extremely well
9.Looking ahead, which areas should FXAA prioritise? Please select up to three.(Required.)