NF Community Learning Needs Assessment
1.
Please indicate your connection to NF and/or CTF:
I live with NF
Caregiver to someone living with NF
Unaffected volunteer or donor
NF Healthcare Provider
Other (please specify)
2.
Which of the following resources have you used and/or shared with others?
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
NF Forum Videos (
CTF Resource Library
under Educational Videos)
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
Ask the Expert (
Webinars
)
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
Resource Library (
Print Materials
)
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
Ask Kate Facebook discussions (took place in 2016-17 via NF Moms Rock FB group)
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
CTF Video Library & Youtube Channel (
media library
)
Last 6 months
Last 1-2 years
Have not used but am aware it exists
Not aware of this resource
3.
What is your preferred way to receive new information? (Select all that apply)
Email from CTF
Regular mailings from CTF national and regional offices
Social Media (CTF national and regional Facebook pages)
Live CTF Events (galas, fundraisers, walks, forum)
Printable materials from CTF website (handbooks, brochures, printable PDF's)
Video presentations and webinars
Other (please specify)
4.
For each of the following items please rate its usefulness to your NF education & support needs.
Extremely useful
Somewhat useful
Not useful
N/A
Forum & Conference videos made available online
Extremely useful
Somewhat useful
Not useful
N/A
Ask the Expert Webinars
Extremely useful
Somewhat useful
Not useful
N/A
Resource Library at CTF website
Extremely useful
Somewhat useful
Not useful
N/A
Ask Kate sessions held on Facebook via NF Moms Rock
Extremely useful
Somewhat useful
Not useful
N/A
CTF Video Library/YouTube Channel
Extremely useful
Somewhat useful
Not useful
N/A
5.
Please provide specific comments about your above answers. If you selected "Not useful", please briefly explain why.
6.
Please indicate your interest in the following education resources:
Very interested
Somewhat interested
Not interested at all
Live, online discussions with Kate on various NF topics.
Very interested
Somewhat interested
Not interested at all
Pre-recorded presentations by NF experts w/ the option to submit follow-up questions.
Very interested
Somewhat interested
Not interested at all
All presentations from CTF forums & conferences available for online viewing.
Very interested
Somewhat interested
Not interested at all
Transcript of interviews with NF experts on specific topics.
Very interested
Somewhat interested
Not interested at all
Expanded written educational materials such as downloadable PDF's on specific topics.
Very interested
Somewhat interested
Not interested at all
7.
Please share any suggestions you have for other education tools CTF could offer the community. If you have seen something done well elsewhere please share that here.
Current Progress,
0 of 7 answered
