Addressing barriers to clinical trial accrual in patients with lung cancer: A survey based approach

Thank you for participating in this survey about clinical trials and clinical trial accrual. A clinical trial is a study that tests new treatments to see if they are effective and safe. Clinical trial accrual is the process of getting people to join a clinical trial. There are different ways researchers try to get people to join. They might talk to doctors, send information out, or use the internet. Sometimes it can be hard to get enough people to join clinical trials . There are a few reasons why this happens. These reasons are called barriers. Some of the most common barriers are lack of information, fear of side effects, too much time/trave required. It's important to overcome these barriers so that clinical trials have enough participants to help find new treatments that can help save lives or improve health. Your answers to this survey will help us understand factors that influence clinical trial accrual the most.
1.Are you a current/past patient with lung cancer?
2.Age:
3.Your sex at birth
4.Sexual orientation
5.Race/Ethnicity
6.Marital status
7.Highest level of education
8.State and County
9.Type of location where you receive or received your cancer care
10.Has your cancer spread to other organs?
11.Have you ever enrolled in a clinical trial ?
12.If you answered NO to the previous question, why?
13.To what extent would having these financial resources lead you to participate in a clinical trial?
Not at all
Somewhat likely
Likely
More likely
Extremely likely
Provided Uber/gas card/parking/meals for trial related activities
If housing /airfare for clinical trial related activities were provided
Knowing in advance what clinical trial related costs will not be covered
If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash
14.To what extent would having access to these services lead you to participate on a clinical trial?
Not at all
Somewhat likely
Likely
More likely
Extremely likely
Offered a video or phone option for trial related visits
Coordination of appointments ie: all scans on same day
More flexibility in scheduling trial related visits and scans
Option to have your blood drawn at home or at a location of your choice
15.To what extent would each of these communication factors lead you to consent to a clinical trial?
Not at all
Somewhat likely
Likely
More likely
Extremely likely
More culturally diverse study team members
A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial
A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial
Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical
A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team
16.To what extent would having these resources lead you to participate in a clinical trial?
Not at all
Somewhat likely
Likely
More likely
Extremely likely
A simple sheet of paper explaining expected and potential side effects/ and how they will be managed
Opportunity to report your symptoms as part of the clinical trial
A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management
Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms