Thank you for taking the time to complete our patient engagement survey. 

About the survey
The Children’s Tumor Foundation is committed  to supporting the NF Community and is conducting  a survey to gather information from patients (or their family or friends) about topics for which the patient is the best source of information. This is an opportunity for all affected individuals and caregivers to participate in the survey as your feedback will help others. The surveys seeks to:
  • Identify community resources already utilized by those affected by NF.
  • Share those identified resources with the NF community.
  • Gather information about unmet needs of NF patients & families.
We will use this information to:
  • Create guides
  • Share resources
  • As a reference for CTF in developing future programs & resources
Areas covered in the survey:
  • Support
  • Medical
  • Education
  • Community Resource
  • Financial
Thank you for participating in our survey. Your feedback is important.

Please click “Next” to continue