We are proposing a study that looks at the many different treatments available to children who are born with a cleft.  We believe that the parent/caregiver point of view is very important.  We want to find out how helpful each treatment has been and what things help parents/caregivers make a decision about which treatment to choose.  We would appreciate it if you could help us by answering the following questions. 

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* Do you have a child with cleft lip and/or cleft palate?

If no, thank you for your interest, but these questions are for parents/caregivers of children with cleft lip and/or cleft palate.

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* 1. Do you think a study that shows how cleft treatments make a difference for children with cleft lip and/or palate would be helpful to you as a parent/caregiver?

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* 2. These are the areas we are thinking of studying.  Please mark a number from 1 (very important) to 5 (not at all important) to tell us how important each one is to you.

  1 (Very Important) 2 3 4 5 (Not at all Important)
a. how your child feels about the appearance of his/her face, nose and teeth
b. how your child is doing in school
c. how clear your child thinks he/she speaks
d. the overall well-being of your child and your family
e. how your child is behaving and feeling
f. how your child makes friends and fits in with his/her classmates

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* 3. How much do you think your child's treatment for his/her cleft has made a difference in the following areas?  Please mark a number from 1 (a very big difference) to 5 (very little difference) for each item to tell us how much your child's treatment for his/her cleft has made a difference.

  1 (A very big difference) 2 3 4 5 (Very little difference)
a. how your child feels about the appearance of his/her face, nose, and teeth
b. how your child is doing in school
c. how well your child thinks he/she speaks
d. overall well-being of your child and his/her family
e. how your child thinks, feels and acts
f. how your child makes friends and fits in with his/her classmates

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* 4. Please rate how important each of these areas were to you when you were making a decision about seeking additional treatment such as a cleft lip revision, surgery on your child's nose, or additional surgery on the palate? 

  1 (Very Important) 2 3 4 5 (Not at all Important)
a. how your child feels about the appearance of his/her face, nose and teeth
b. how your child is doing in school
c. how clear your child thinks he/she speaks
d. the overall well-being of your child and your family
e. how your child is behaving and feeling
f. how your child makes friends and fits in with his/her classmates

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* 5. What other topics should be included in this study?

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