IFOPA Board of Directors Interest Form

Thank you for your interest in serving on the International FOP Association's (IFOPA's) Board of Directors. When Board members share their time, talent and treasure with the IFOPA, we are one step closer to achieving our shared vision – a cure for FOP.

Please take a moment to fill out this brief interest form. Our Board Development & Nominating Committee looks forward to learning more about your expertise and specific areas of interest. We are considering multiple people for a limited number of positions. As part of the nomination process, we will schedule a follow-up conversation with you.

If you have any questions, you can reach us at together@ifopa.org.

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* 1. Name:

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* 2. Credentials (MD, PhD, etc.)

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* 3. City:

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* 4. State/Province:

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* 5. Country:

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* 6. Preferred Telephone Number:

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* 7. Is Your Preferred Telephone Number:

Mobile

Home

Business

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* 8. Your Time Zone:

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* 9. Preferred Email:

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* 10. Occupation (if applicable):

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* 11. Job Title (if applicable):

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* 12. Employer (if applicable):

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* 13. I am a:

Person w/ FOP

Family Member of a Person w/ FOP (specify relationship below)

Friend of a Person w/ FOP (list individual below)

Researcher / Health Care Professional (list institution/organization below)

Other:

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* 14. Age Range:

18-21

22-29

30-39

40-49

50-59

60+

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* 15. Do you speak a foreign language?

Yes, Specify language(s):

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* 16. As a governing member of the Board, you are among the IFOPA's top volunteer leaders. Please share with us some details about your leadership experience in the FOP community and/or on other committees or boards.

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* 17. As a member of the IFOPA's Board, you'll be called upon to:

Secure Resources - Give and get financial resources and contacts and provide special skills

Support - Volunteer and attend programs and events

Raise Awareness - Be an ambassador and invite participation

Can you please share some examples of how you've served and/or supported the FOP community or the IFOPA?

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* 18. To help us better understand your background, please indicate below if you have educational/professional experience in any of the following area(s) of expertise. Check all that apply.

Business Management
Ability to understand and give direction to business practices and policy development

Disability Services
Ability and experience in supporting and connecting individuals with disabilities to resources and support services

Family Support
Ability and experience working with different family structures to support individual members of the family and the family unit as a whole

Finance
Ability to understand and give direction in the financial operations of the organization including accounting, investments, audits, etc.

Fundraising
Ability and experience holding fundraising events or asking for donations

Human Resources
Ability to understand and set direction for human resource policy and demonstrate practices of inclusion, diversity, equity and access

Legislative Advocacy
Ability to work closely with advocacy partners on the federal and/or state level to encourage policies supportive of the needs of a community or cause (rare disease experience a bonus)

Marketing and Communications
Ability to understand and set direction in the areas of social media, marketing, communication, public relations, image and/or advertising

Mental Health
Ability and experience in mental health and/or related support services

Nonprofit Management
Ability and experience in nonprofit management and administration

Organizational Development
Ability to assess the viability of an organization's structure and culture

Patient Advocacy
Ability and experience in voicing the needs of a community or cause (rare disease experience a bonus)

Patient Care
Ability and experience in patient care (rare disease experience a bonus)

Scientific Research and Drug Development
Ability and experience in scientific research and/or drug development. Please note any experience in rare disease drug development.

IFOPA Board of Directors Interest Form

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* 1. Name:

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* 2. Credentials (MD, PhD, etc.)

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* 3. City:

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* 4. State/Province:

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* 5. Country:

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* 6. Preferred Telephone Number:

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* 7. Is Your Preferred Telephone Number:

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* 8. Your Time Zone:

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* 9. Preferred Email:

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* 10. Occupation (if applicable):

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* 11. Job Title (if applicable):

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* 12. Employer (if applicable):

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* 13. I am a:

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* 14. Age Range:

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* 15. Do you speak a foreign language?

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* 16. As a governing member of the Board, you are among the IFOPA's top volunteer leaders. Please share with us some details about your leadership experience in the FOP community and/or on other committees or boards.

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* 18. To help us better understand your background, please indicate below if you have educational/professional experience in any of the following area(s) of expertise. Check all that apply.

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* 19. Please share why you are interested in serving on the IFOPA's Board of Directors.

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* 20. If you aren't selected to serve on the Board of Directors, would you be interested in joining a committee?