We need your help! Everything we do at the Greater Sacramento Chapter is targeted toward fulfilling our vision of a world without ALS.  Each year we survey the ALS community to gain valuable insight into the efficacy of our programming.  

If you are a pALS or cALS registered with The Greater Sacramento Chapter, please take a moment and complete our 2021 survey.  Your feedback is tremendously important to ensure the ongoing needs of our ALS community are met. 

Thank you in advance for helping us improve!
PROGRAMS & SERVICES

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* 1. Please rate your satisfaction with each program/service you have utilized.  

If you would like more information on any program/service you are not familiar with, please contact Care Services at (916) 979-9265.

  Excellent Good Neutral  Fair  Poor N/A- I have not utilized this program
Equipment Loan Program
Communication Device Loan Program
People with ALS (PALS) Support Groups
Caregiver Support Groups
"Transitions" (Grief & Loss) Support Group
Certified Centers/Clinics Associated with the Chapter
Information, Resources & Referrals
PALS 4 Life Grant Program
Trainings and Presentations

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* 2. For each program/service you have utilized at any point since joining our Chapter, mark the level of importance for each. Please skip any questions related to services you have not utilized.

  Very Important  Important  Moderately Important  Slightly Important  Not Important  N/A
Equipment Loan Program
Communication Device Loan Program
People with ALS (PALS) Support Groups
Caregiver Support Groups
"Transitions" (Grief & Loss) Support Group
Certified Centers/ Clinics associated with the chapter
Information, Resources & Referrals
ALS disease navigation assistance from a care services coordinator
Ask the Experts Research Symposium
Trainings/Presentations
PALS 4 Life Financial Grants
Other
OVERALL IMPRESSION

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* 3. Please rank each question:

  Strongly Agree Agree Neutral  Somewhat Disagree Strongly Disagree N/A
The Greater Sacramento staff are knowledgeable about my condition and provide resources to meet my needs.
The Greater Sacramento Chapter staff follow-up on my concerns, inquiries, and needs in a timely manner.
In general, The ALS Association Greater Sacramento Chapter has been helpful and supportive to my family.
I find the educational materials provided by The Association to be informative and helpful.
ADDITIONAL QUESTIONS

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* 4. Please indicate any barriers preventing you from utilizing services:

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* 5. Have you experienced emergent needs as a result of the COVID-19 pandemic? Please specify below.

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* 6. Are there any additional programs or services that you think would be helpful to people living with ALS and their caregivers?

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* 7.  Please add any ideas for educational topics you would like to see covered at Support Groups or at the Ask the Experts Research Symposium

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* 8. Please offer any suggestions you have for improving our EXISTING programs and services:

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* 9. Have you registered for the National ALS Registry?

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* 10. My (or my family's) most imminent need is:

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* 11. Please add any final comments or feedback you would like to share:

Thank you for taking the time to complete this very important survey! Your feedback is crucial to our programs and services, helping us to ensure the needs of the ALS community continue to be met moving forward.
If you would like to be contacted regarding any portion of this survey or would like more information on any of the programs listed, please provide your contact information below. 

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* 12. Name and preferred contact information (Optional):

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