ASHG Survey: Gathering Stories on the Impact of U.S. Federal Policies on the Human Genetics and Genomics Community

We are gathering personal stories to better understand how recent policy changes are impacting our members. If you have examples of human genetics & genomics research funded by NIH or other federal agencies that have been impacted by recent federal policy changes, we encourage you to share them. Please feel free to share this survey with colleagues who are conducting related research.

All responses will be kept confidential and shared only in aggregate to highlight broader impacts. At the end of the survey, you will have the option to provide your name and email. If you choose to share this information, an ASHG staff member may reach out to you regarding your responses. Providing your name or email is optional and not required to complete the survey.

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1. Location(s) where the research is being done (U.S. state). (Required.)

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2. What is your current sector/professional work or training environment (please select the most applicable)? (Required.)

Academia / University / College

Clinical / Hospital / Medical Center / Patient Care

Government

Industry / Private sector / For-profit organization

Non-profit / Non-governmental organization / Foundation

Other (please specify)

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3. Area(s) of research focus / grant research topic(s). (Required.)

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4. Project abstract or a short research summary. (Required.)

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5. Has this research project(s) been slowed, halted, or otherwise impacted by recent NIH policies (e.g., proposed changes to Facilities & Administration [F&A] rates, study section cancellations, grant renewal/disbursement delays, etc.)? If yes, please share as much detail as you are able. (Required.)

Yes

If yes, please share as much as you are able.

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6. Have you submitted a grant where the review was delayed or cancelled? (Required.)

Yes

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7. Have you experienced any of the following impacts in your work or at your institution? Select all that apply. (Required.)

Stress or concern about the future of science

Difficulty hiring / retaining international students or scholars

Increased difficulty securing visas for travel or research

Loss of funding / grants

Loss of position on an NIH review board

Loss of your own job

Halting / limiting hiring graduate students

Loss of staff

Recission of a job offer / graduate program offer

Feelings of political pressure or restrictions on research topics

Delays or disruptions in grant applications or federal funding disbursement

Limiting / stopping travel for scientific meetings

Other (please specify)

None of the above

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8. What actions have you taken in response to the recent policy changes? Select all that apply. (Required.)

Participated in rallies

Emailed my elected official(s)

Called my elected officials(s)

Attended a local town hall or other constituent briefing

Terminated staff

Considered leaving the research field

Explored leaving my current location / institution

Taken on fewer students

Met with my elected officials(s) and/or their staff

Explored a different career path within science (e.g., science policy)

Other (please specify)

None of the above

ASHG Survey: Gathering Stories on the Impact of U.S. Federal Policies on the Human Genetics and Genomics Community

Question Title

* 1. Location(s) where the research is being done (U.S. state). (Required.)

Question Title

* 2. What is your current sector/professional work or training environment (please select the most applicable)? (Required.)

Question Title

* 3. Area(s) of research focus / grant research topic(s). (Required.)

Question Title

* 4. Project abstract or a short research summary. (Required.)

Question Title

Question Title

* 6. Have you submitted a grant where the review was delayed or cancelled? (Required.)

Question Title

* 7. Have you experienced any of the following impacts in your work or at your institution? Select all that apply. (Required.)

Question Title

* 8. What actions have you taken in response to the recent policy changes? Select all that apply. (Required.)

1. Location(s) where the research is being done (U.S. state). (Required.)

2. What is your current sector/professional work or training environment (please select the most applicable)? (Required.)

3. Area(s) of research focus / grant research topic(s). (Required.)

4. Project abstract or a short research summary. (Required.)

6. Have you submitted a grant where the review was delayed or cancelled? (Required.)

7. Have you experienced any of the following impacts in your work or at your institution? Select all that apply. (Required.)

8. What actions have you taken in response to the recent policy changes? Select all that apply. (Required.)