The Phelan-McDermid Syndrome Foundation’s Family Conference is held every two years. We often hear that two years feels like a long time to wait for the next in-person event, especially for families whose loved one is diagnosed shortly after a conference.
PMSF is exploring whether we could offer an additional opportunity for families to gather in-person during non-conference years. The ideas below are still in the early planning stage. Your feedback will help us understand what families would be most likely to attend, what would make participation possible, and which options would best meet our community’s needs.
This survey should take approximately 5 minutes to complete. Your responses are for planning purposes only and do not commit you to attending an event.
