Ehlers-Danlos survey |
Introduction
In partnership with the Regroupement québécois des maladies orphelines (RQMO) and McGill University, MEDEloop wishes to launch a research project on Ehlers-Danlos syndrome and hypermobility spectrum disorders, diseases affecting connective tissue. MEDEloop (https://www.medeloop.ai/) is a company that offers an innovative IT solution, giving patients with chronic diseases the opportunity to participate directly in the research and development of new therapeutic solutions.
This survey is for anyone who thinks they have or has a diagnosis of Ehlers-Danlos or a hypermobility spectrum disorder and who live in the province of Quebec.