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MASLD Patient Survey

Metabolic dysfunction-associated steatotic liver disease (MASLD) is a condition where there is a buildup of fat in the liver in people with diabetes, obesity, high blood pressure, or high cholesterol and drink little to no alcohol. Up to 30 out of 100 people or over 100 million of American adults have MASLD. Obesity is thought to be the most common cause of fatty infiltration of the liver. Some experts estimate that about two thirds of obese adults and half of obese children may have fatty liver. About 2 to 5 percent of adult Americans and up to 20 percent of those who are obese may suffer from the more severe condition metabolic dysfunction-associated steatohepatitis (MASH- the advanced stage of MASLD).
1.Why are you interested in Steatotic liver disease (SLD)?
2.How were you diagnosed with steatotic liver disease (SLD)?
3.What health care professional diagnosed your liver condition?
4.How would you describe your present disease stage?
5.How would you rate your knowledge of your disease?
6.Do you have any of the following conditions (check all that apply)?
7.Have you had a liver biopsy?
8.If you have had a liver biopsy, how many times?
9.What types of non-invasive liver testing have you experienced (check all that apply)
10.Since your diagnosis of Steatotic liver disease (SLD), how successful do you believe you have been in making significant changes to your lifestyle habits (i.e., diet and physical activity)?
11.Have you participated in a clinical trial for Steatotic liver disease (SLD)?
12.Would you be willing to participate in a clinical trial for Steatotic liver disease (SLD)?
13.Please describe your physical activity level
14.How many sugar-sweetened beverages do you consume in an average week?
15.What are the food groups that you usually include in your diet? Select all that apply.
16.How are your meals generally prepared?
17.Do you follow a nutritional program?
18.What is your transplant status
19.Have you experienced the complications of end stage liver disease (hepatorenal syndrome or HRS-1, hepatic encephalopathy or HE, varices, variceal bleeding, ascites)? Please check all that apply and add any other information in the Other box.
20.What are the social insecurities you currently face? Select all that apply.
21.What other kinds of resources do you need that are not currently available? Please share your needs below. Additional comments
22.Do you belong to a patient support group?
23.Have you heard of the NASH kNOWledge Liver Support Group
24.In what areas would you want more information?
25.What gender specific or race specific health issues could we focus on?
26.What resources and support does your caregiver(s) need?
27.What gender do you identify with?
28.What is your age?
29.What is your ethnicity?
30.Please include your email and mailing address to receive a $10.00 gift card for completing this program evaluation. Thank you for your valuable feedback!
Current Progress,
0 of 30 answered