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* 1. People sometimes ask what dystonia is like for us. It is often tricky to know how to put it in words. These questions are based on how some have described it. Does it feel like there's a G force pressure on you or gravity but pushing you sideways?

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* 2. Does it feel like a key was stuck in the back of your neck and slowly wound up?

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* 3. Do the spasms feel like normal jerks as people fall asleep but they happen thousands of times a day?

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