October is Spina Bifida Awareness Month, and we want to spend it celebrating you!

Tell us what is worth celebrating this year, who deserves recognition, and where the community still needs progress. Your answers will shape what we publish, promote, and prioritize during Awareness Month and beyond.
  • Please complete this survey on or before September 18, 2026.
  • Questions marked with an asterisk (*) are required; all others are optional.
  • Your answers will remain confidential, unless you provide us permission to share them.
  • If you are under 18, please have a parent or guardian complete this survey with you.

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1. What is your connection to the Spina Bifida community?

Select all that apply. (Required.)

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2. Where are you located?

If you prefer not to share your street address, you may provide just your city, state, and zip code.

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3. Thinking about Spina Bifida, what is something you’re proud of that you’d like us to celebrate or recognize?

These could be things that went well for you personally or in your family, wins in research or in clinical care, or positive changes at the community‑level. They may include milestones unnoticed by others, but that you feel are positive steps forward.

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4. Who deserves a shout-out for supporting people with Spina Bifida and their families?

Tell us briefly what they’ve done and why they should be celebrated. You may highlight individuals, groups, clinicians, researchers, organizations, companies, or even yourself—anyone making a meaningful impact in the Spina Bifida community.

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5. SBA’s mission is to create a world where everyone impacted by Spina Bifida is accepted and thrives. Our work focuses on:
  • research
  • education for individuals, families and clinicians
  • improving clinical care, and
  • advocacy
What do you see as the biggest barriers to meaningful progress for the Spina Bifida community?

Select up to three. Your responses will help us better understand where to focus our efforts. (Required.)

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6. Of the challenges you selected above, which has had the greatest impact on you?

Please tell us more about your experience.

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7. Looking ahead, what do you hope we are able to recognize or celebrate a year from now?

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8. May we share any of the responses you provided above?

SBA might like to share some of your responses during Spina Bifida Awareness Month. We will only share your responses in the way you authorize.
 (Required.)

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9. May we lightly edit your responses for length and clarity while preserving your intended meaning? (Required.)

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10. Where may we share your responses?

Select all that apply.

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11. How can we contact you?

Your answers will help us celebrate Spina Bifida Awareness month in a way that reflects what the community is most proud of.

Questions? Email communications@spinabifidaassociation.org

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