2019 International TSC Research Conference Feedback
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1.
Which of these describes you? (Choose all that apply)
(Required.)
Researcher and/or healthcare provider
Early career researcher
Individual with TSC or caregiver or relative of someone with TSC
Patient organization representative
Exhibitor
Other (please specify)
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2.
Which parts of the conference did you attend? (Choose all that apply)
(Required.)
Research Conference's scientific plenary sessions
Early Career Researcher Symposium
TS Canada ST Educational Meeting
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3.
Overall, how would you rate the 2019 International TSC Research Conference: Changing the Course of TSC?
(Required.)
Excellent
Very good
Good
Fair
Poor
4.
Did you gain new ideas for collaborations upon which you will follow up after the conference?
Yes
No
Not applicable
5.
How valuable to you was this conference for strengthening ongoing collaborations in which you were already involved before the conference?
Extremely valuable
Very valuable
Somewhat valuable
Not so valuable
Not at all valuable
Not applicable
6.
How satisfied were you with these aspects of the research conference?
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Early career researcher program on Thursday morning
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Plenary sessions: quality of presentations
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Plenary sessions: balance between invited talks (30 min each) and talks selected from submitted abstracts (15 min each)
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Plenary sessions: mixing of talk topics within sessions rather than having distinct sessions on, for example, epilepsy, LAM, TAND, signaling pathways, etc.
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Opening night dinner and keynote speaker
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Breakout working groups
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
One-minute poster preview presentations
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Poster session: quality of scientific content and discussion
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Poster session: logistics -- size of posters and floor space around posters
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Poster session: time available for poster viewing and discussion
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Joint session with patients and families on Saturday afternoon
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Exhibits
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Duration of lunch and coffee breaks
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Food
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Audio and visual
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Room temperature and setup
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Hotel room and facilities
Very satisfied
Somewhat satisfied
Neither satisfied or dissatisfied
Somewhat dissatisfied
Very dissatisfied
No opinion or did not attend
Please add any specific comments here
7.
What would you add to the conference or do differently to better meet the needs of basic, translational, or clinical researchers?
8.
Was the research conference length too long, too short, or about right?
Much too long
Somewhat too long
Slightly too long
About right
Slightly too short
Somewhat too short
Much too short
9.
What did you like best about the research conference?
10.
What would you suggest we change about the scientific aspects of the conference?
11.
How organized was the execution of the research conference?
Extremely organized
Very organized
Somewhat organized
Not so organized
Not at all organized
Comments
12.
How helpful were the on-site TS Alliance staff and the on-site volunteers?
Extremely helpful
Very helpful
Somewhat helpful
Not so helpful
Not at all helpful
13.
Do you feel that you got enough information about the event prior to arrival?
Yes
No
Comments
14.
Is there anything else you’d like to share about the event?
