STUDY INFORMATION AND CONFIDENTIALITY
The purpose of this research study is to learn more about the kinds of sleep-related problems experienced by people living with spinal cord injury (SCI).
Problems experienced with sleep such as ‘sleep-disordered breathing (SDB)’ are often portrayed as routine ‘annoyances’ that result in next day sleepiness. However, chronic SDB is both a recognized medical diagnosis and a serious health hazard. Typical symptoms of SDB include snoring, restless sleep, insomnia, excessive leg motion, and nighttime bedwetting. These symptoms result in excessive daytime drowsiness, irritability, depression, memory deficits, and inability to concentrate. These symptoms contribute to impairment of quality of life.
The information gained from this study will provide valuable information to scientists who study sleep disorders associated with SCI. This information is needed in order to create treatment protocols that are effective for, and can be routinely used by people living with SCI. By sharing your information with these scientists you are providing vital information that contributes to the future direction of clinical treatments. Your voice can make a difference!
You will be asked to enter your name at the beginning of the survey questions, however, your name will not be saved permanently within the survey. This is only to ensure people do not mistakenly complete the survey more than once. You must have a pass code in order to enter the secure website. To obtain a pass code, please contact The Miami Project to Cure Paralysis at mpinfo@med.miami.edu . Once you have completed the survey, your answers will no longer be linked to your pass code or your name, thus maintaining your anonymity and confidentiality.
This study involves an online questionnaire that takes about 10 minutes to complete. You must complete the survey in one sitting, and you cannot re-enter the survey once you exit. To participate in this study you must have a spinal cord injury and be over the age of 18. By requesting a pass code, you are confirming that you meet these requirements and are willing to participate in this study. If you have questions or concerns, you can contact Dr. Kim Anderson-Erisman (Director of Education for The Miami Project to Cure Paralysis) at mpinfo@med.miami.edu .