Quality of Life and Breast Cancer
 

1. INTRODUCTION

 
Hello! Please take a moment to complete my survey!
Your feedback will not only be greatly appreciated, but it will also provide valuable information to support women through breast cancer.

This survey is designed to assess your personal perspecitive of breast cancer treatment, recovery, and overall quality of life. The intentions of the study are to understand your point of view in order to promote effective doctor-patient communication. This research will contribute to the greater conversations surrounding communication, breast cancer, quality of life and complementary/alternative therapies.

This survey will take approximately 20 minutes to complete. There is a brief section on demographics, followed by sections of questions to understand your current assessment of your quality of life, and your participation in and evaluation of complementary and alternative therapies. At the end of the survey you will be asked to participate in a short answer section that will take approximately 10 minutes to complete.

While this survey will take some time to fill out, we want you to know how valuable this information will be to breast cancer patients! The time you take to fill out all of these questions will be very much appreciated. Thank you!!

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1. San Diego State University
Consent to Act as a Research Participant
Breast Cancer and Quality of Life

You are being asked to participate in a research study. Before you give your consent to volunteer, it is important that you read the following information and ask as many questions as necessary to be sure you understand what you will be asked to do.

Investigators: Research will be conducted by Allison Briggs Abbott, M.A. and Dr. Patricia Geist-Martin, San Diego State University, School of Communication.

Purpose of the Study: The purpose of this research is to examine the construction of quality of life following breast cancer treatment. Eligibility criteria includes: Breast cancer survivors.

Description of the Study: Screening Procedures: To determine if you are eligible to participate, you will be asked if you are a breast cancer survivor. If your response indicates that you are eligible, you will be asked to participate in an online survey that should take no more than 30 minutes to complete. If you are not eligible to participate, the information obtained from you during screening will be omitted from this study.

If you choose to participate in this study you will be given a survey that will ask you questions pertaining to:
• Demographics
• Breast cancer treatment and status
• Quality of life assessment
• Use of Complementary and Alternative Care (CAM)
• Evaluation and assessment of CAM
• Short answer experiential responses

Risks or Discomforts: Minimal risks are associated with this study. Because of the nature of the questions asked, you may reflect on personal experiences/memories while responding to a survey question. You do not have to answer any question you don’t feel comfortable answering. If you begin to feel uncomfortable, you may discontinue participation, either temporarily or permanently.

Benefits of the Study: By participating in this study, you may be aiding the health communication field and its scholars in the expansion of knowledge about breast cancer community awareness. Additionally, you may be providing valuable insight into improved communication surrounding holistic healing and breast cancer. I cannot guarantee, however, that you will receive any benefits from participating in this study.

Confidentiality: Confidentiality will be maintained to the extent allowed by law. Research files will be stored at the residence of Allison Briggs Abbott for the duration of research and for three years following the completion of research. Subjects will not be identified in the publication. Participants have the right to review survey responses and research prior to submission to conferences or publication. Allison Briggs Abbott, M.A. and Dr. Patricia Geist-Martin, and participants are the only people allowed to access research (participants only able to access their information, not other participants’).

Incentives to Participate: Participant will not be paid to participate in this study.

Costs and/or Compensation for Participation: There will be no costs or compensation for participant.

Voluntary Nature of Participation: Participation in this study is voluntary. Your choice of whether or not to participate will not influence your future relations with the researchers or San Diego State University. If you decide to participate, you are free to withdraw your consent and to stop your participation at any time without penalty or loss of benefits to which you are allowed.

Questions about the Study: If you have any questions about the research you may contact Allison Briggs Abbott (telephone: 858-336-7496; email: allibriggs@yahoo.com).

If you have any questions about your rights as a participant in this study, you may contact the Division of Research Affairs San Diego State University (telephone: 619-594-6622; email: irb@mail.sdsu.edu).

Consent to Participate: The San Diego State University Institutional Review Board has approved this consent form, as signified