Scottish Hepatitis C Patient's Forum Survey

The Resource Centre is committed to collective patient advocacy. Launched at the Scottish Hepatitis C Stakeholder's Conference in Perth on October 1st, the Hepatitis C Patients Forum will aim to directly influence the delivery of Hepatitis C services in Scotland by;
• Acting as a representative steering committee to provide unique patient perspectives to the work of The Hepatitis C Resource Centre.
• Providing opportunities for people living with Hepatitis C to build supportive and encouraging community, helping to overcome the isolation often felt by people living with the virus. The Forum is currently in a consultation phase and will go live in January 2010.
• The next annual Hepatitis C Service User Conference in 2010, will provide greater opportunities for service user involvement in planning and delivering the Conference.

The Patients Forum will also feature an online community, which aims to bring people together to offer advice and support on a range of issues. To ensure that the online forum meets the needs of service users, we are carrying out the following survey. We would ask that you direct service users towards the survey, but we are also interested in your views.

Scottish Hepatitis C Patient's Forum Survey
Exit this survey

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1. What do you see as the main issues facing you as a service user?
Please tick 3 boxes

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2. Which subjects would you like the Scottish Hepatitis C service user forum to tackle first?
Please tick 3 boxes

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3. When you were first diagnosed, where did you get the most useful information from about hepatitis C?

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4. What additional information would you have found useful when you were first diagnosed with hepatitis C?

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5. Have you any suggestions for the steering group about the direction the forum should take?

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6. In your experience, what support is most needed for someone with hepatitis C?

7. Are you

8. Approximately how old are you?

9. How would you describe your ethnicity?

What do you see as the main issues facing you as a service user? Please tick 3 boxes Information on treatment Support during testing Support during treatment Social stigma Maintaining employment	Help with Benefits Family/personal relationships Access to services Travel
Other (please specify)

Scottish Hepatitis C Patient's Forum SurveyExit this survey

*1. What do you see as the main issues facing you as a service user?Please tick 3 boxes

*2. Which subjects would you like the Scottish Hepatitis C service user forum to tackle first?Please tick 3 boxes

*3. When you were first diagnosed, where did you get the most useful information from about hepatitis C?

*4. What additional information would you have found useful when you were first diagnosed with hepatitis C?

*5. Have you any suggestions for the steering group about the direction the forum should take?

*6. In your experience, what support is most needed for someone with hepatitis C?