Hydrocephalus in MPS
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1. Default Section
1
. I have or my child has this form of MPS:
I have or my child has this form of MPS:
MPS I
MPS II
MPS III
MPS IV
MPS VI
MPS VII
MPS IX
2
. I or my child has been diagnosed with hydrocephalus
I or my child has been diagnosed with hydrocephalus
Yes
No
No, but I suspect that I or my child has it
3
. I or my child has a shunt
I or my child has a shunt
Yes
No
4
. I began suspecting I or my child had hydrocephalus:
MM
DD
YYYY
Approximate date
I began suspecting I or my child had hydrocephalus: Approximate date Month
/
Day
/
Year
5
. I or my child had a shunt placed
MM
DD
YYYY
Approximate date
I or my child had a shunt placed Approximate date Month
/
Day
/
Year
6
. My or my child's age when the shunt was placed
My or my child's age when the shunt was placed
Age
7
. The symptoms that caused me to suspect hydrocephalus were:
The symptoms that caused me to suspect hydrocephalus were:
Headaches
Holding head
Hitting head
Didn't want to lie down
Acting not like himself/herself
More easily agitated
Vomiting
Loss of appetite
Lethargy
Biting things
Loss of balance / abnormal gait
Unexplained fevers
Rapid head growth
Rapid cognitive regression
Abnormal ventricles on MRI
Swelling of the optic nerve
Other (please specify)
8
. To confirm the diagnosis, doctors performed
To confirm the diagnosis, doctors performed
Lumbar puncture
ICP monitoring (bolt)
MRI
9
. If an LP (or multiple LPs) was/were performed, the opening pressure was
If an LP (or multiple LPs) was/were performed, the opening pressure was
Number(s)
10
. The changes I've noticed after shunt placement are
The changes I've noticed after shunt placement are
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