Orchid: Supporting men and families affected by male cancer Survey

Question Title

* 1. Please tell us about yourself by ticking the relevant box

I have testicular cancer/have had testicular cancer

I have penile cancer/have had penile cancer

I have prostate cancer/have had prostate cancer

I am a carer/family member/ friend

I am interested in learning more about these cancers

Question Title

* 2. Where do you currently go for information about any concerns you have about cancer?

Consultant

Family/Friends/Carers

Internet

Magazines/Newsletters/Newspapers

Other charities/organisation (please specify)

	Very Useful	Adequate	Poor
GP	GP Very Useful	GP Adequate	GP Poor
Consultant	Consultant Very Useful	Consultant Adequate	Consultant Poor
Family/Friends/Carers	Family/Friends/Carers Very Useful	Family/Friends/Carers Adequate	Family/Friends/Carers Poor
Internet	Internet Very Useful	Internet Adequate	Internet Poor
Magazines/Newsletters/Newspapers	Magazines/Newsletters/Newspapers Very Useful	Magazines/Newsletters/Newspapers Adequate	Magazines/Newsletters/Newspapers Poor
Other	Other Very Useful	Other Adequate	Other Poor

Very Useful

Adequate

Poor

GP Very Useful

GP Adequate

GP Poor

Consultant

Consultant Very Useful

Consultant Adequate

Consultant Poor

Family/Friends/Carers

Family/Friends/Carers Very Useful

Family/Friends/Carers Adequate

Family/Friends/Carers Poor

Internet

Internet Very Useful

Internet Adequate

Internet Poor

Magazines/Newsletters/Newspapers

Magazines/Newsletters/Newspapers Very Useful

Magazines/Newsletters/Newspapers Adequate

Magazines/Newsletters/Newspapers Poor

Other

Other Very Useful

Other Adequate

Other Poor

	Very important	Important	Not important
Telephone service run by male cancer information specialists	Telephone service run by male cancer information specialists Very important	Telephone service run by male cancer information specialists Important	Telephone service run by male cancer information specialists Not important
Telephone service run by general cancer specialists	Telephone service run by general cancer specialists Very important	Telephone service run by general cancer specialists Important	Telephone service run by general cancer specialists Not important
Telephone service run by volunteers	Telephone service run by volunteers Very important	Telephone service run by volunteers Important	Telephone service run by volunteers Not important
Support group of other people with similar cancers	Support group of other people with similar cancers Very important	Support group of other people with similar cancers Important	Support group of other people with similar cancers Not important
Counselling service	Counselling service Very important	Counselling service Important	Counselling service Not important
Benefits advice service	Benefits advice service Very important	Benefits advice service Important	Benefits advice service Not important

Very important

Important

Not important

Telephone service run by male cancer information specialists

Telephone service run by male cancer information specialists Very important

Telephone service run by male cancer information specialists Important

Telephone service run by male cancer information specialists Not important

Telephone service run by general cancer specialists

Telephone service run by general cancer specialists Very important

Telephone service run by general cancer specialists Important

Telephone service run by general cancer specialists Not important

Telephone service run by volunteers

Telephone service run by volunteers Very important

Telephone service run by volunteers Important

Telephone service run by volunteers Not important

Support group of other people with similar cancers

Support group of other people with similar cancers Very important

Support group of other people with similar cancers Important

Support group of other people with similar cancers Not important

Counselling service

Counselling service Very important

Counselling service Important

Counselling service Not important

Benefits advice service

Benefits advice service Very important

Benefits advice service Important

Benefits advice service Not important

	Very important	Important	Not important
Questions about diagnosis and treatment options	Questions about diagnosis and treatment options Very important	Questions about diagnosis and treatment options Important	Questions about diagnosis and treatment options Not important
Questions about treatment side effects and after care	Questions about treatment side effects and after care Very important	Questions about treatment side effects and after care Important	Questions about treatment side effects and after care Not important
Questions about relationships/sexual issues	Questions about relationships/sexual issues Very important	Questions about relationships/sexual issues Important	Questions about relationships/sexual issues Not important
Questions about emotional and psychological support	Questions about emotional and psychological support Very important	Questions about emotional and psychological support Important	Questions about emotional and psychological support Not important
Information about practical issues e.g benefits advice, insurance etc	Information about practical issues e.g benefits advice, insurance etc Very important	Information about practical issues e.g benefits advice, insurance etc Important	Information about practical issues e.g benefits advice, insurance etc Not important
Questions about how to talk to your employer/friends/family about your illness	Questions about how to talk to your employer/friends/family about your illness Very important	Questions about how to talk to your employer/friends/family about your illness Important	Questions about how to talk to your employer/friends/family about your illness Not important
Information about latest treatments under development	Information about latest treatments under development Very important	Information about latest treatments under development Important	Information about latest treatments under development Not important
Other	Other Very important	Other Important	Other Not important

Very important

Important

Not important

Questions about diagnosis and treatment options

Questions about diagnosis and treatment options Very important

Questions about diagnosis and treatment options Important

Questions about diagnosis and treatment options Not important

Questions about treatment side effects and after care

Questions about treatment side effects and after care Very important

Questions about treatment side effects and after care Important

Questions about treatment side effects and after care Not important

Questions about relationships/sexual issues

Questions about relationships/sexual issues Very important

Questions about relationships/sexual issues Important

Questions about relationships/sexual issues Not important

Questions about emotional and psychological support

Questions about emotional and psychological support Very important

Questions about emotional and psychological support Important

Questions about emotional and psychological support Not important

Information about practical issues e.g benefits advice, insurance etc

Information about practical issues e.g benefits advice, insurance etc Very important

Information about practical issues e.g benefits advice, insurance etc Important

Information about practical issues e.g benefits advice, insurance etc Not important

Questions about how to talk to your employer/friends/family about your illness

Questions about how to talk to your employer/friends/family about your illness Very important

Questions about how to talk to your employer/friends/family about your illness Important

Questions about how to talk to your employer/friends/family about your illness Not important

Information about latest treatments under development

Information about latest treatments under development Very important

Information about latest treatments under development Important

Information about latest treatments under development Not important

Other

Other Very important

Other Important

Other Not important

Orchid: Supporting men and families affected by male cancer

Question Title

* 1. Please tell us about yourself by ticking the relevant box

Question Title

* 2. Where do you currently go for information about any concerns you have about cancer?

Question Title

* 3. How useful did you find information from the following sources?

Question Title

* 4. Please rate the following services and how important they would be to you

Question Title

* 5. Please rate the following concerns and how important they are to you