The Cystinosis Patient Survey |
The Cystinosis Patient Survey is designed to help us and our partner companies learn more about important areas affecting our community, including your experience with cystinosis, use of cysteamine eye drops and the type of resources and support most meaningful to people touched by this disease.
By completing this brief questionnaire, you are helping make a difference for the cystinosis patient community. All of your personal and contact information will remain confidential.
Please complete a separate survey for each patient with cystinosis. For example, if you have two children with cystinosis, please complete two surveys.
Thank you in advance for your support. If you have any questions, please contact Kelly Butterworth at 202.591.4052 or kelly@jonespa.com.
By completing this brief questionnaire, you are helping make a difference for the cystinosis patient community. All of your personal and contact information will remain confidential.
Please complete a separate survey for each patient with cystinosis. For example, if you have two children with cystinosis, please complete two surveys.
Thank you in advance for your support. If you have any questions, please contact Kelly Butterworth at 202.591.4052 or kelly@jonespa.com.