IC23 - WHOSE LIFE IS IT ANY WAY? MEASURING MEANINGFUL OUTCOMES FOR CHILDREN WITH SEVERE DISABILITIES

Learning Objectives:
1) Define the concepts of quality of life (QOL) and health related quality of life (HRQL).
2) Discuss the challenges inherent to the measurement of children’s QOL/HRQL and the major domains to select and evaluate QOL instruments for children. Introduce the framework of patient priorities.
3) Demonstrate how QOL/HRQL instruments are constructed, using the development of the CPCHILD and other examples to understand the properties of reliability, validity and responsiveness.
4) Discuss the application, scoring and interpretation of the CPCHILD Questionnaire.

Question Title

* 1. Please indicate your opinion about each of the following statements.

  Strongly Agree Agree Neutral Disagree Strongly Disagree
The course followed description in the program.
The course began on time and was well paced.
The faculty communicated clearly and effectively.
The course used practical examples to teach points.
The faculty involved participants in the course.
The faculty allowed enough time for questions.
The course met its objectives as stated in the program.
The information presented will help me accomplish my professional responsibilities.
The course has given me a basis for making changes in my practice.

Question Title

* 2. Did this course have a commercial bias?

Question Title

* 3. Should the Academy repeat this course next year?

Question Title

* 4. Please suggest any topics of interest for a future course.

Question Title

* 5. General comments:

( Privacy & Cookie Notice

T