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BRK11: ENGAGING IN RESEARCH WITH CHILDREN WITH NEURODEVELOPMENTAL DISABILITIES: CONSENT AND ASSENT ISSUES

Learning Objectives:
1) Identify the basic ethical principles that underlie informed consent in research with children.
2) Describe practical considerations in implementing the assent requirement in pediatric research.
3) Describe the risks associated with participating in genetic studies.
4) Outline potential conflicts related to the dual provider/researcher role in clinical research and implications for the consent process.

	Strongly Agree	Agree	Neutral	Disagree	Strongly Disagree
The course followed description in the program.	The course followed description in the program. Strongly Agree	The course followed description in the program. Agree	The course followed description in the program. Neutral	The course followed description in the program. Disagree	The course followed description in the program. Strongly Disagree
The course began on time and was well paced.	The course began on time and was well paced. Strongly Agree	The course began on time and was well paced. Agree	The course began on time and was well paced. Neutral	The course began on time and was well paced. Disagree	The course began on time and was well paced. Strongly Disagree
The faculty communicated clearly and effectively.	The faculty communicated clearly and effectively. Strongly Agree	The faculty communicated clearly and effectively. Agree	The faculty communicated clearly and effectively. Neutral	The faculty communicated clearly and effectively. Disagree	The faculty communicated clearly and effectively. Strongly Disagree
The course used practical examples to teach points.	The course used practical examples to teach points. Strongly Agree	The course used practical examples to teach points. Agree	The course used practical examples to teach points. Neutral	The course used practical examples to teach points. Disagree	The course used practical examples to teach points. Strongly Disagree
The faculty involved participants in the course.	The faculty involved participants in the course. Strongly Agree	The faculty involved participants in the course. Agree	The faculty involved participants in the course. Neutral	The faculty involved participants in the course. Disagree	The faculty involved participants in the course. Strongly Disagree
The faculty allowed enough time for questions.	The faculty allowed enough time for questions. Strongly Agree	The faculty allowed enough time for questions. Agree	The faculty allowed enough time for questions. Neutral	The faculty allowed enough time for questions. Disagree	The faculty allowed enough time for questions. Strongly Disagree
The course met its objectives as stated in the program.	The course met its objectives as stated in the program. Strongly Agree	The course met its objectives as stated in the program. Agree	The course met its objectives as stated in the program. Neutral	The course met its objectives as stated in the program. Disagree	The course met its objectives as stated in the program. Strongly Disagree
The information presented will help me accomplish my professional responsibilities.	The information presented will help me accomplish my professional responsibilities. Strongly Agree	The information presented will help me accomplish my professional responsibilities. Agree	The information presented will help me accomplish my professional responsibilities. Neutral	The information presented will help me accomplish my professional responsibilities. Disagree	The information presented will help me accomplish my professional responsibilities. Strongly Disagree
The course has given me a basis for making changes in my practice.	The course has given me a basis for making changes in my practice. Strongly Agree	The course has given me a basis for making changes in my practice. Agree	The course has given me a basis for making changes in my practice. Neutral	The course has given me a basis for making changes in my practice. Disagree	The course has given me a basis for making changes in my practice. Strongly Disagree

Strongly Agree

Agree

Neutral

Disagree

Strongly Disagree

The course followed description in the program.

The course followed description in the program. Strongly Agree

The course followed description in the program. Agree

The course followed description in the program. Neutral

The course followed description in the program. Disagree

The course followed description in the program. Strongly Disagree

The course began on time and was well paced.

The course began on time and was well paced. Strongly Agree

The course began on time and was well paced. Agree

The course began on time and was well paced. Neutral

The course began on time and was well paced. Disagree

The course began on time and was well paced. Strongly Disagree

The faculty communicated clearly and effectively.

The faculty communicated clearly and effectively. Strongly Agree

The faculty communicated clearly and effectively. Agree

The faculty communicated clearly and effectively. Neutral

The faculty communicated clearly and effectively. Disagree

The faculty communicated clearly and effectively. Strongly Disagree

The course used practical examples to teach points.

The course used practical examples to teach points. Strongly Agree

The course used practical examples to teach points. Agree

The course used practical examples to teach points. Neutral

The course used practical examples to teach points. Disagree

The course used practical examples to teach points. Strongly Disagree

The faculty involved participants in the course.

The faculty involved participants in the course. Strongly Agree

The faculty involved participants in the course. Agree

The faculty involved participants in the course. Neutral

The faculty involved participants in the course. Disagree

The faculty involved participants in the course. Strongly Disagree

The faculty allowed enough time for questions.

The faculty allowed enough time for questions. Strongly Agree

The faculty allowed enough time for questions. Agree

The faculty allowed enough time for questions. Neutral

The faculty allowed enough time for questions. Disagree

The faculty allowed enough time for questions. Strongly Disagree

The course met its objectives as stated in the program.

The course met its objectives as stated in the program. Strongly Agree

The course met its objectives as stated in the program. Agree

The course met its objectives as stated in the program. Neutral

The course met its objectives as stated in the program. Disagree

The course met its objectives as stated in the program. Strongly Disagree

The information presented will help me accomplish my professional responsibilities.

The information presented will help me accomplish my professional responsibilities. Strongly Agree

The information presented will help me accomplish my professional responsibilities. Agree

The information presented will help me accomplish my professional responsibilities. Neutral

The information presented will help me accomplish my professional responsibilities. Disagree

The information presented will help me accomplish my professional responsibilities. Strongly Disagree

The course has given me a basis for making changes in my practice.

The course has given me a basis for making changes in my practice. Strongly Agree

The course has given me a basis for making changes in my practice. Agree

The course has given me a basis for making changes in my practice. Neutral

The course has given me a basis for making changes in my practice. Disagree

The course has given me a basis for making changes in my practice. Strongly Disagree

Question Title

* 1. Please indicate your opinion about each of the following statements.

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* 2. Did this course have a commercial bias?

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* 3. Should the Academy repeat this course next year?

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* 4. Please suggest any topics of interest for a future course.

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* 5. General comments: