Traumatic Brain Injury and South Asian Communities
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1. Traumatic Brain Injury and South Asian Communities

 
The Purpose of this Survey:

The Division of Disability Services in New Jersey, the South Asian Total Health Initiative (SATHI), and The Elizabeth M. Boggs Center on Developmental Disabilities, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey are doing a collaborative project to find the best ways to develop and distribute information and resource materials about traumatic brain injury (TBI) for South Asian individuals, their families, and friends who have been impacted by TBI. By traumatic brain injury, the Division of Disability Services uses the definition from the Centers for Disease Control: A traumatic brain injury (TBI) is caused by a bump, blow, or jolt to the head or a penetrating head injury that disrupts the normal function of the brain. See the variety of possible causes in Question 3 of the survey.

The first step of this project is this eight question survey for any individual, family, professional, community organization (e.g. religious or cultural), or agency that serves people within the South Asian community. By South Asian, we mean individuals and families with backgrounds in India, Pakistan, Bangladesh, Sri Lanka, Nepal, Bhutan, and the Maldives.

Please share this survey and web site with individuals, families, your friends, service providers, and/or organizations in the South Asian community. The questionnaire is anonymous. We are not asking for your names on the survey. We would welcome a phone call or email from you if:

•You are an individual with brain injury or a family member, and would be willing to talk about your experience, ideas, or suggestions.

•You would like to learn about the survey results, and help us refine materials that will be developed on the basis of the survey and interview results.

If you have questions about the project and/or survey,or if you are willing to talk with us about your experience and ideas, please feel free to contact:

Bill Gaventa, M.Div. Associate Professor of Pediatrics, Director, Community and Congregational Supports, at The Boggs Center. Phone 732-235-9304 or e-mail bill.gaventa@umdnj.edu

Thank you very much for your time, feedback, and ideas!
1. Check off the category or background that best fits you:
2. If you are a person with a traumatic brain injury or immediate family member:
3. How did the injury happen? (check the appropriate box)
4. Were you able to find information about traumatic brain injury, supports and resources that were helpful to you or continue to be helpful?
5. If no, what kind of information would have been helpful to you? Check all that apply:
6. What kind of resource would be most helpful to you? Check all that apply:
7. Would resources in languages other than English be helpful to you?
8. What suggestions and ideas do you have about the kind of information needed about Traumatic Brain Injury (TBI) and the best ways to distribute it?