sbaMass Programs Survey

sbaMass is conducting this survey to better meet the needs of our constituents. If you have additional input, not included in this survey, please contact Ellen Heffernan-Dugan at edugan@sbaMass.org or 888-479-1900

Thank you for your participation

1. Age of individual living with Spina Bifida

Age of individual living with Spina Bifida Birth to age 6

7 - 11

12 - 16

17+

2. How far are you willing to travel to attend an event?

How far are you willing to travel to attend an event? Less than 20 miles

Between 20-50 miles

Into Boston

Within Rte 128

Within Rte 495

Other

3. What time of the week is best for you to attend events?

What time of the week is best for you to attend events? Educational Events: Weekday Evenings

Social Events: Weekends

Social Events: Weekday Evenings

Educational Events: Weekends

4. As the parent of a child with Spina Bifida what has been the most challenging age? Why?

As the parent of a child with Spina Bifida what has been the most challenging age? Why? Birth - 2

2 - 6

6 - 11

12 - 16

17+

Comment

5. As the parent of a child with Spina Bifida what has been/ would have been most supportive for you?

As the parent of a child with Spina Bifida what has been/ would have been most supportive for you?

6. As an adult with Spina Bifida, what has been the most challenging part of living with Spina Bifida? Younger than 12, as a teen ager, as an adult

As an adult with Spina Bifida, what has been the most challenging part of living with Spina Bifida? Younger than 12, as a teen ager, as an adult

7. As a parent, what aspects of raising a child with a disability has been most stressful to you?

As a parent, what aspects of raising a child with a disability has been most stressful to you? Educational concerns and planning

Advocating for services

Time demands

Financial issues

Concern regarding the future of your child

Dividing time and attention between child and siblings

Stress regarding medical and/or safety issues

Locating appropriate resources

Lack of opportunity to spend time with one's spouse

Total or near total responsibility by one parent

Other (please specify)

8. What resources do you use and find helpful?

What resources do you use and find helpful? sbaMass events

sbaMass newsletter

sbaMass and SBA List servs

SBA website

sbaMass website

Comment

9. Would you be interested in :

Would you be interested in : Half day conference

Full Day Conference

10. Please update contact information ie: email, phone, address

Please update contact information ie: email, phone, address

sbaMass Programs
Exit this survey

1. sbaMass Program Committee Survey

1. Age of individual living with Spina Bifida

2. How far are you willing to travel to attend an event?

3. What time of the week is best for you to attend events?

4. As the parent of a child with Spina Bifida what has been the most challenging age? Why?

5. As the parent of a child with Spina Bifida what has been/ would have been most supportive for you?

6. As an adult with Spina Bifida, what has been the most challenging part of living with Spina Bifida? Younger than 12, as a teen ager, as an adult

7. As a parent, what aspects of raising a child with a disability has been most stressful to you?

8. What resources do you use and find helpful?

9. Would you be interested in :

10. Please update contact information ie: email, phone, address

sbaMass ProgramsExit this survey

1. sbaMass Program Committee Survey

1. Age of individual living with Spina Bifida

2. How far are you willing to travel to attend an event?

3. What time of the week is best for you to attend events?

4. As the parent of a child with Spina Bifida what has been the most challenging age? Why?

5. As the parent of a child with Spina Bifida what has been/ would have been most supportive for you?

6. As an adult with Spina Bifida, what has been the most challenging part of living with Spina Bifida? Younger than 12, as a teen ager, as an adult

7. As a parent, what aspects of raising a child with a disability has been most stressful to you?

8. What resources do you use and find helpful?

9. Would you be interested in :

10. Please update contact information ie: email, phone, address

sbaMass Programs
Exit this survey