Give us a break - accessing travel insurance

 

Welcome to the PNH Alliance travel insurance survey. The PNH Alliance is a newly formed group representing people with the ultra-orphan disease Paroxysmal Nocturnal Haemoglobinuria (PNH), and we are seeking to profile the issues surrounding PNH and other rare diseases through an ongoing process of informing, educating and working with healthcare professionals, government agencies and politicians.

This survey is the first part of an inquiry into access to travel insurance for people with rare diseases and forms part of our ongoing activity to support the rare disease community.

We are hoping that this patient survey will allow us to do the following:

• Give a voice to patient experience in accessing travel insurance
• Offer a platform to raise issues of access to travel insurance
• Understand if there is demand for an enhanced government role in supporting the rare disease community in accessing travel insurance
• That the outcomes of the full inquiry will drive forward a renewed commitment from both industry and the government to ensure more equal access to travel insurance along with sharing existing industry best practice.

The survey will take approximately ten minutes to complete. Thank you in advance.