PHA Transplant Resources Survey

We appreciate your participation in this online survey to assess the needs of the transplant community. Through your feedback, PHA will be able to create and modify resources to better address the needs of the PH community. This survey should only take about 5-10 minutes. Please answer as many questions as you'd like. If you would like to provide any additional feedback, please email Meghan at Transplant@PHAssociation.org. Thank you for your help.

Question Title

* 1. How would you identify yourself? Please select one response.

I am a transplant survivor

I am awaiting a transplant

My doctor has recommended me for a transplant

I may need to consider transplantation in the future

I am a caregiver or patient and was curious about the impact of transplantation

I am a medical professional

Other

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* 2. If you are a transplant survivor, how long ago was your transplant? Please select one response.

< 1 year ago

1-3 years ago

3-5 years ago

5-8 years ago

8+ years ago

Question Title

* 3. If you are awaiting transplant, how long have you been on a transplant list?

<1 month

1-3 months

3-6 months

6-9 months

9-12 months

1-3 years

3+ years

Question Title

* 4. On a scale from 1 to 10, with 1 being uninteresting and 10 being most interesting, how interesting is the topic of transplantation to you?

Question Title

* 5. Where do you currently get information about transplantation?

Medical professionals

Internet

My support group

Friends and family

other

Question Title

* 6. What type of transplant support would be most beneficial for you or your patients? Select all that apply.

Support from transplant survivors

Hearing stories and experiences from transplant survivors

Information from transplant survivors

Opportunities to share my story with others

Opportunities to talk to other people considering/recommended for transplant

Discussions between patients considering transplant

Conversations between transplant survivors and patients considering transplant

Other

Question Title

* 7. What type of educational resources on transplant would be most valuable to you or your patients? Select all that apply.

E-learning events led by medical professionals on transplantation

Education about transplant lists

Information about psycho-social issues related to transplant

Pre-transplant information

Post-transplant information

Other

Question Title

* 8. What were/are your biggest questions about transplantation?

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* 9. I think PHA's transplant resources should focus more on

Support

Education

A combination of both

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* 10. Ideally, PHA would become

my primary transplant support group

a place for me to share my transplant stories with others

a place for me to get more information about transplantation

a place to go when I have specific transplantation questions

a place that helps when I am feeling nervous about transplantation

Other

Question Title

* 11. If you answered "Other" for any of the previous questions, please provide an explanation here.

If you have any additional feedback, please provide here or email to Meghan at Transplant@PHAssociation.org.

Question Title

* 1. How would you identify yourself? Please select one response.

Question Title

* 2. If you are a transplant survivor, how long ago was your transplant? Please select one response.

Question Title

* 3. If you are awaiting transplant, how long have you been on a transplant list?

Question Title

* 4. On a scale from 1 to 10, with 1 being uninteresting and 10 being most interesting, how interesting is the topic of transplantation to you?

Question Title

* 5. Where do you currently get information about transplantation?

Question Title

* 6. What type of transplant support would be most beneficial for you or your patients? Select all that apply.

Question Title

* 7. What type of educational resources on transplant would be most valuable to you or your patients? Select all that apply.

Question Title

* 8. What were/are your biggest questions about transplantation?

Question Title

* 9. I think PHA's transplant resources should focus more on

Question Title

* 10. Ideally, PHA would become

Question Title

* 11. If you answered "Other" for any of the previous questions, please provide an explanation here. If you have any additional feedback, please provide here or email to Meghan at Transplant@PHAssociation.org.

* 11. If you answered "Other" for any of the previous questions, please provide an explanation here.

If you have any additional feedback, please provide here or email to Meghan at Transplant@PHAssociation.org.