Winning with CF 2010: Pre-class Survey #1
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1. About Your Child...
These questions are gathering some basic information about your child with CF as well as identifying the areas you might be having trouble with. By the end of this class, you will have new ways to handle many of these issues.
1
. In order for us to match up your pre- and post class surveys, we need you to pick a code name. My code name is:
In order for us to match up your pre- and post class surveys, we need you to pick a code name. My code name is:
2
. What best describes your child's medical adherence? (check one box for each item)
All of the time
Most of the time
Some of the time
Not much of the time
Pancreatic Enzymes
What best describes your child's medical adherence? (check one box for each item) Pancreatic Enzymes All of the time
Pancreatic Enzymes Most of the time
Pancreatic Enzymes Some of the time
Pancreatic Enzymes Not much of the time
Nutrition
Nutrition All of the time
Nutrition Most of the time
Nutrition Some of the time
Nutrition Not much of the time
Breathing Treatments
Breathing Treatments All of the time
Breathing Treatments Most of the time
Breathing Treatments Some of the time
Breathing Treatments Not much of the time
Airway Clearance
Airway Clearance All of the time
Airway Clearance Most of the time
Airway Clearance Some of the time
Airway Clearance Not much of the time
Exercise
Exercise All of the time
Exercise Most of the time
Exercise Some of the time
Exercise Not much of the time
Comments
3
. What is the most common reason for your child's non- adherence?
Forgetting
Resistant behavior
Don't see value in it
Financial Issues
Not Enough Time
Embarrassment
Need more training/ education
Tastes Bad
Side Effects
Pancreatic Enzymes
What is the most common reason for your child's non- adherence? Pancreatic Enzymes Forgetting
Pancreatic Enzymes Resistant behavior
Pancreatic Enzymes Don't see value in it
Pancreatic Enzymes Financial Issues
Pancreatic Enzymes Not Enough Time
Pancreatic Enzymes Embarrassment
Pancreatic Enzymes Need more training/ education
Pancreatic Enzymes Tastes Bad
Pancreatic Enzymes Side Effects
Nutrition
Nutrition Forgetting
Nutrition Resistant behavior
Nutrition Don't see value in it
Nutrition Financial Issues
Nutrition Not Enough Time
Nutrition Embarrassment
Nutrition Need more training/ education
Nutrition Tastes Bad
Nutrition Side Effects
Breathing Treatments
Breathing Treatments Forgetting
Breathing Treatments Resistant behavior
Breathing Treatments Don't see value in it
Breathing Treatments Financial Issues
Breathing Treatments Not Enough Time
Breathing Treatments Embarrassment
Breathing Treatments Need more training/ education
Breathing Treatments Tastes Bad
Breathing Treatments Side Effects
Airway Clearance
Airway Clearance Forgetting
Airway Clearance Resistant behavior
Airway Clearance Don't see value in it
Airway Clearance Financial Issues
Airway Clearance Not Enough Time
Airway Clearance Embarrassment
Airway Clearance Need more training/ education
Airway Clearance Tastes Bad
Airway Clearance Side Effects
Exercise
Exercise Forgetting
Exercise Resistant behavior
Exercise Don't see value in it
Exercise Financial Issues
Exercise Not Enough Time
Exercise Embarrassment
Exercise Need more training/ education
Exercise Tastes Bad
Exercise Side Effects
Comments:
4
. Please select the best response for each question:
Strongly Disagree
Disagree
Agree
Strongly Agree
My child complies with medical requirements without my reminding, lecturing or coercion.
Please select the best response for each question: My child complies with medical requirements without my reminding, lecturing or coercion. Strongly Disagree
My child complies with medical requirements without my reminding, lecturing or coercion. Disagree
My child complies with medical requirements without my reminding, lecturing or coercion. Agree
My child complies with medical requirements without my reminding, lecturing or coercion. Strongly Agree
I have the parenting skills I need to handle my child’s behavioral and emotional issues.
I have the parenting skills I need to handle my child’s behavioral and emotional issues. Strongly Disagree
I have the parenting skills I need to handle my child’s behavioral and emotional issues. Disagree
I have the parenting skills I need to handle my child’s behavioral and emotional issues. Agree
I have the parenting skills I need to handle my child’s behavioral and emotional issues. Strongly Agree
I feel supported and understood by others in regards to our family’s healthcare challenges.
I feel supported and understood by others in regards to our family’s healthcare challenges. Strongly Disagree
I feel supported and understood by others in regards to our family’s healthcare challenges. Disagree
I feel supported and understood by others in regards to our family’s healthcare challenges. Agree
I feel supported and understood by others in regards to our family’s healthcare challenges. Strongly Agree
Despite our challenges, I am hopeful about the future. I can handle it!
Despite our challenges, I am hopeful about the future. I can handle it! Strongly Disagree
Despite our challenges, I am hopeful about the future. I can handle it! Disagree
Despite our challenges, I am hopeful about the future. I can handle it! Agree
Despite our challenges, I am hopeful about the future. I can handle it! Strongly Agree
5
. Overall, the grade I would give my child on his/her self-care performance is (A,B,C,D,F):
Overall, the grade I would give my child on his/her self-care performance is (A,B,C,D,F):
6
. The grade I would give myself on my response to my child’s performance is (A,B,C,D,F):
The grade I would give myself on my response to my child’s performance is (A,B,C,D,F):
7
. My child is: ____________ years old.
My child is: ____________ years old.
8
. My biggest parenting challenge is:
My biggest parenting challenge is:
9
. I hope to learn:
I hope to learn:
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