Choosing a Transplant Center: A Patient’s Guide Survey

Please answer the following questions about Choosing a Transplant Center: A Patient’s Guide. We need your feedback to make our materials as helpful as possible.

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* 1. Who reads the information in Choosing a Transplant Center: A Patient’s Guide? (Check all that apply)

Patient

Caregiver

Patient’s Family Member

Health Care Professional

Other (please specify)

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* 2. Does the information in Choosing a Transplant Center: A Patient’s Guide help you to:
(Please select from "Very much" to "Not applicable" for each topic.)

	Very much	Somewhat	Not at all	Not applicable
Have better conversations with your doctor and medical team?	Have better conversations with your doctor and medical team? Very much	Have better conversations with your doctor and medical team? Somewhat	Have better conversations with your doctor and medical team? Not at all	Have better conversations with your doctor and medical team? Not applicable
Have better conversations with your family/friends?	Have better conversations with your family/friends? Very much	Have better conversations with your family/friends? Somewhat	Have better conversations with your family/friends? Not at all	Have better conversations with your family/friends? Not applicable
Decide to have a transplant?	Decide to have a transplant? Very much	Decide to have a transplant? Somewhat	Decide to have a transplant? Not at all	Decide to have a transplant? Not applicable
Decide where to have a transplant?	Decide where to have a transplant? Very much	Decide where to have a transplant? Somewhat	Decide where to have a transplant? Not at all	Decide where to have a transplant? Not applicable

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* 3. How useful were the following topic areas in Choosing a Transplant Center: A Patient’s Guide? (Please select from "Very Useful" to "Not Useful" or "Did Not Read" for each topic.)

	Very Useful	Somewhat Useful	Not Useful	Did Not Read
About the National Marrow Donor Program	About the National Marrow Donor Program Very Useful	About the National Marrow Donor Program Somewhat Useful	About the National Marrow Donor Program Not Useful	About the National Marrow Donor Program Did Not Read
Choosing a Transplant Center	Choosing a Transplant Center Very Useful	Choosing a Transplant Center Somewhat Useful	Choosing a Transplant Center Not Useful	Choosing a Transplant Center Did Not Read
Questions to Ask When Choosing a Transplant Center	Questions to Ask When Choosing a Transplant Center Very Useful	Questions to Ask When Choosing a Transplant Center Somewhat Useful	Questions to Ask When Choosing a Transplant Center Not Useful	Questions to Ask When Choosing a Transplant Center Did Not Read
Understanding Transplant Center Statistics	Understanding Transplant Center Statistics Very Useful	Understanding Transplant Center Statistics Somewhat Useful	Understanding Transplant Center Statistics Not Useful	Understanding Transplant Center Statistics Did Not Read
Outside Resources	Outside Resources Very Useful	Outside Resources Somewhat Useful	Outside Resources Not Useful	Outside Resources Did Not Read
Diseases Treatable by Marrow and Cord Blood Transplantation	Diseases Treatable by Marrow and Cord Blood Transplantation Very Useful	Diseases Treatable by Marrow and Cord Blood Transplantation Somewhat Useful	Diseases Treatable by Marrow and Cord Blood Transplantation Not Useful	Diseases Treatable by Marrow and Cord Blood Transplantation Did Not Read
NMDP United States Transplant Centers (Index)	NMDP United States Transplant Centers (Index) Very Useful	NMDP United States Transplant Centers (Index) Somewhat Useful	NMDP United States Transplant Centers (Index) Not Useful	NMDP United States Transplant Centers (Index) Did Not Read
Transplant Center Comparison	Transplant Center Comparison Very Useful	Transplant Center Comparison Somewhat Useful	Transplant Center Comparison Not Useful	Transplant Center Comparison Did Not Read
Glossary of Terms	Glossary of Terms Very Useful	Glossary of Terms Somewhat Useful	Glossary of Terms Not Useful	Glossary of Terms Did Not Read

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* 4. After reading Choosing a Transplant Center: A Patient’s Guide, did you do any of the following? (Check all that apply)

Did not read Choosing a Transplant Center: A Patient’s Guide

Use the online version of Choosing a Transplant Center: A Patient’s Guide at www.marrow.org/access

Call the Office of Patient Advocacy (OPA) at 1(888) 999-6743

E-mail OPA at patientinfo@nmdp.org

Visit the NMDP website at www.marrow.org

Contact another organization listed in the resources section

Other (please specify)

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* 5. Do you know about the online version of Choosing a Transplant Center: A Patient’s Guide? (Check one)

Yes, I used the online version

Yes, but I did not use the online version

No, I was not aware of the online version

If no, please explain:

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* 6. If you used the online version of Choosing a Transplant Center: A Patient’s Guide, were you able to find the information you needed? (Check one)

Yes

Some but not all

Did not use

Please explain:

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* 7. Overall, how would you rate Choosing a Transplant Center: A Patient’s Guide? (Check one)

Very Good

Good

Fair

Poor

Very Poor

Please explain:

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* 8. Would you recommend Choosing a Transplant Center: A Patient’s Guide to someone else in your situation?

Yes

Maybe

Don’t know

Please explain:

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* 9. Would you recommend the Office of Patient Advocacy to someone else in your situation?

Yes

Maybe

Don’t know

I'm not aware of the Office of Patient Advocacy

Please explain:

For the following questions, please tell us about yourself. The information you provide helps us understand your needs. All answers are confidential.

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* 10. Patient is:

Male

Female

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* 11. Patient's age:

0-10 years

11-17 years

18-30 years

31-40 years

41-50 years

51-64 years

65 years and above

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* 12. Patient's ethnicity:

Hispanic or Latino

Not Hispanic or Latino

Decline to answer

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* 13. Patient's race: (Check all that apply)

American Indian or Alaska Native

Asian

Black or African American

Native Hawaiian or Other Pacific Islander

White

Don't know

Decline to answer

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* 14. Patient's highest level of education:

High School

Associate

Undergraduate or Bachelors

Graduate or Doctoral

Decline to answer

Choosing a Transplant Center: A Patient’s Guide

1. Please take a moment to give us your feedback

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* 1. Who reads the information in Choosing a Transplant Center: A Patient’s Guide? (Check all that apply)

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* 2. Does the information in Choosing a Transplant Center: A Patient’s Guide help you to:
(Please select from "Very much" to "Not applicable" for each topic.)

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* 3. How useful were the following topic areas in Choosing a Transplant Center: A Patient’s Guide? (Please select from "Very Useful" to "Not Useful" or "Did Not Read" for each topic.)

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* 4. After reading Choosing a Transplant Center: A Patient’s Guide, did you do any of the following? (Check all that apply)

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* 5. Do you know about the online version of Choosing a Transplant Center: A Patient’s Guide? (Check one)

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* 6. If you used the online version of Choosing a Transplant Center: A Patient’s Guide, were you able to find the information you needed? (Check one)

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* 7. Overall, how would you rate Choosing a Transplant Center: A Patient’s Guide? (Check one)

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* 8. Would you recommend Choosing a Transplant Center: A Patient’s Guide to someone else in your situation?

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* 9. Would you recommend the Office of Patient Advocacy to someone else in your situation?

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* 10. Patient is:

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* 11. Patient's age:

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* 12. Patient's ethnicity:

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* 13. Patient's race: (Check all that apply)

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* 14. Patient's highest level of education:

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* 15. Any additional comments or suggestions:

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* 1. Who reads the information in Choosing a Transplant Center: A Patient’s Guide? (Check all that apply)

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* 2. Does the information in Choosing a Transplant Center: A Patient’s Guide help you to: (Please select from "Very much" to "Not applicable" for each topic.)

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* 3. How useful were the following topic areas in Choosing a Transplant Center: A Patient’s Guide? (Please select from "Very Useful" to "Not Useful" or "Did Not Read" for each topic.)

Question Title

* 4. After reading Choosing a Transplant Center: A Patient’s Guide, did you do any of the following? (Check all that apply)

Question Title

* 5. Do you know about the online version of Choosing a Transplant Center: A Patient’s Guide? (Check one)

Question Title

* 6. If you used the online version of Choosing a Transplant Center: A Patient’s Guide, were you able to find the information you needed? (Check one)

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* 7. Overall, how would you rate Choosing a Transplant Center: A Patient’s Guide? (Check one)

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* 8. Would you recommend Choosing a Transplant Center: A Patient’s Guide to someone else in your situation?

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* 9. Would you recommend the Office of Patient Advocacy to someone else in your situation?

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* 10. Patient is:

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* 11. Patient's age:

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* 12. Patient's ethnicity:

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* 13. Patient's race: (Check all that apply)

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* 14. Patient's highest level of education:

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* 15. Any additional comments or suggestions:

* 2. Does the information in Choosing a Transplant Center: A Patient’s Guide help you to:
(Please select from "Very much" to "Not applicable" for each topic.)