Chronic Illness: Cognitions, Activity patterns, Coping

Participant information

 
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Chronic Illness: Cognitions, Activity patterns, Coping
Information for Participants

Thank you for expressing an interest in taking part in this study.
Before deciding whether to take part, please, read the information about the study below. If you have any questions or concerns, please contact us by emailing iana.alexeeva@psy.ox.ac.uk. Take as long as you want to make your decision.

Our research group is interested in how people monitor their health and illness, how they cope with psychological side effects of having a chronic illness, and how certain thoughts, emotions, and behaviours may affect the severity and duration of distress that results from battling conditions like Myalgic Encephalomyelitis (M.E.) /Chronic Fatigue Syndrome (CFS), Asthma and Cancer. We are investigating whether some particular thought and behavioural patterns influence how people choose to cope with their illness and its treatment.

Survey Content
If you decide to take part in this study, we will ask you to provide some demographic information (education, age, gender). You will be asked to fill out questionnaires about your health, activity, thoughts, and emotions. The study will take about 30 - 40 minutes. However, you can leave the survey to rest and come back an hour or a day later. You can click exit survey, but do not close the browser window. When you come back to the survey it should take you back to where you stopped.

There will be a brief screening questionnaire before the main study. If you are excluded from the study for any reason your data will be deleted. Also, some of the questions will be about your health. However, no member of the research team is medically trained, so we are unable to give medical advice.

Inclusion Criteria
People with no current medical or mental health diagnosis.
People with a diagnosis of Chronic Fatigue Syndrome/ M.E.
People with Asthma diagnosis
People with cancer.

Exclusion criteria
You need good English to take part in the study. People who have a current PRIMARY diagnosis other than M.E./Chronic Fatigue Syndrome, cancer, or asthma should not take part in this study.

Confidentiality
Any information you give will be treated with strict confidentiality, unless in the rare circumstance that you or someone else is at risk of serious harm. In this circumstance, only information directly relating to the emergency will be disclosed. Any responses you give which can be used to identify you will be anonymised or stored separately from the rest of your answers. Online data will be stored securely and only accessible to the researchers, and any hard copies of your responses will be anonymised and kept in a locked room only accessible by the researchers. If any results of these experiments are published or reported, it will not be possible to identify you from the reports.

Informed Consent
After the screening questionnaire, you will be asked to fill in a consent form indicating that you agree to take part in the study. You are still free to quit the study at any point if you wish to do so, by exiting the survey. There will be no follow up if you decide to quit the study, and you do not need to tell us why.

Ethical approval
This project has been reviewed by, and received ethics clearance through, the University of Oxford Central University Research Ethics Committee. Maintenance of confidentiality of information is subject to normal legal requirements.

Further information
If you have any questions about the study, please contact Iana Alexeeva at
iana.alexeeva@psy.ox.ac.uk.


Researchers:
Iana Alexeeva (STUDY CONTACT)
Address: Department of Experimental Psychology, South Parks Road, University of Oxford OX1 3UD UK
Email: iana.alexeeva@psy.ox.ac.uk
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