Narcolepsy Survey
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1
. Do you feel as if this group has helped you cope with the diagnosis of narcolepsy?
Do you feel as if this group has helped you cope with the diagnosis of narcolepsy?
Yes
No
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2
. What do you feel the strengths of this organization are?
What do you feel the strengths of this organization are?
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3
. What do you feel the weaknesses of this organization are?
What do you feel the weaknesses of this organization are?
4
. What area do you feel you have used this organization most for?
What area do you feel you have used this organization most for?
Diagnosis
Treatment
Drug Information
Support
Friends
Alternative Medicine
Other (please specify)
5
. Do you attend "Real-Life" Support Group meetings?
Do you attend "Real-Life" Support Group meetings?
Yes
No
6
. Do You feel this network is more of less beneficial than your "real-life" support group meetings?
Do You feel this network is more of less beneficial than your "real-life" support group meetings?
More
Neutral
Less
I do not attend "Real-Life" support groups
Other (please specify)
7
. How often do you visit forums in this organization?
How often do you visit forums in this organization?
Extremely often
Very often
Moderately often
Slightly often
Not at all often
8
. How strong is the sense of community in this organization?
How strong is the sense of community in this organization?
Extremely strong
Very strong
Moderately strong
Slightly strong
Not at all strong
9
. What types of events would you attend if they were held in this organization?
What types of events would you attend if they were held in this organization?
10
. How often do you participate in activities in this organization?
How often do you participate in activities in this organization?
Extremely often
Very often
Moderately often
Slightly often
Not at all often
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