Thank you for taking the time to fill out this brief survey. for the Evans Syndrome Community Network (ESCN). We are using this as a jumping-off point for what will likely be a series of surveys in order to gather information about Evans Syndrome, the people who struggle with it, and their families.
If you are not a person with Evans Syndrome, or the parent of a child (under 18) with Evans Syndrome, please refrain from taking this survey.
This survey is meant for people currently living with Evan Syndrome. If you are the parent or family member of a person who had Evans Syndrome but that person is no longer living, please do not take this survey: There will be further surveys established to gather this type of information.
To contact us, please email ESCN@me.com.