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Enter basic information about yourself.
. Do you have a confirmed diagnosis of VHL?
Do you have a confirmed diagnosis of VHL?
Yes, confirmed by DNA testing
Yes, clinical diagnosis based on various tumors and family history
VHL suspected, but diagnosis inconclusive
No, other diagnosis
Other (please specify diagnosis given)
. In what year were you born?
In what year were you born?
Year you were born
. What is your age today?
What is your age today?
Enter your age today
. Where do you live?
Where do you live?
Large urban center with excellent care available
Medium urban center with excellent care available
Medium urban center with less than excellent care available in the immediate area
Rural area with a terrific ophthalmologist
Rural area with less than terrific eye care available
I have to travel 1-2 hours to see the retinal specialist
I have to travel more than 2 hours to see the retinal specialist
I do not feel I can keep up with the recommended screenings because of financial and/or travel concerns
Other (please specify)
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