2014 MCH State Plan Input

Thank you for taking the time to visit this page.

Kentucky's Commission for Children with Special Health Care Needs (CCSHCN) is requesting your feedback or comments on the draft annual state plan and progress report for the 2014 Maternal and Child Health (MCH) services block grant submission. You may find this document on CCSHCN's webpage, at: http://www.chfs.ky.gov/ccshcn. You will likely need to refer to the document in order to answer the following questions.

We value the input we receive from youths, families of children and youth with special health care needs (CYSHCN), and other stakeholders such as CCSHCN staff. Your responses to these questions will assist us to formulate the annual state plan and progress report. Thank you for reviewing the draft, and your thoughtful response.

This is an 11-question survey. There is a lot of information here; please comment on as many or as few of the questions as you are able or willing. We will be accepting comments until May 17, 2013.

Should you have any questions about the 2014 Maternal and Child Health (MCH) services block grant submission, please contact Mike Weinrauch at CCSHCN via e-mail (mike.weinrauch@ky.gov) or phone (502-429-4430, ext. 2026).

Don't forget to click the "Done" button to submit your responses. And again, thank you.
1. Your Role:
2. If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft overview narrative updates (those in bold and italics and marked /2014/ on the document), please enter them below.
3. National Performance Measure 2 measures the percentage of Children with Special Health Care Needs (CSHCN) whose families partner in decision making at all levels and are satisfied with the services they receive. During fiscal year 2012, CCSHCN's data shows an indicator of 96.9%, which is down from 97% in fiscal year 2011. The data is derived from the responses to 2 separate questions on clinic comment cards - questions which ask about patient satisfaction with CCSHCN services and whether families feel that CCSHCN staff listen to them.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
4. National Performance Measure 3 measures the percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home. During fiscal year 2012, CCSHCN's data shows an indicator of 94.1%, which is down from 94.5% in fiscal year 2011. The data is derived from a query of the CCSHCN information system, which asks what percentage of CCSHCN patients 0-18 have a primary care physician. (We are aware that primary care physcian is not the same thing as a medical home, and that the data source for the indicator is imperfect.)

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
5. National Performance Measure 4 measures the percentage of CSHCN whose families have adequate private and/or public insurance to pay for the services they need. During fiscal year 2012, CCSHCN's data shows an indicator of 96.4%, which is up from 96% in fiscal year 2011. The data is derived from a query of the CCSHCN information system, which asks what percentage of CCSHCN patients 0-18 have public or private insurance coverage.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
6. National Performance Measure 5 measures the percentage of Children with Special Health Care Needs (CSHCN) whose families report the community-based service systems are organized so they can use them easily. During fiscal year 2012, CCSHCN's data shows an indicator of 96.4%, which is down from 97.4% in fiscal year 2011. The data is derived from from a query of the CCSHCN information system, which asks what percentage of CCSHCN patients 0-18 have a recorded care coordination or similar type of note. (We are aware that this may not be the most valid measurement of NPM 5, and that the data source for the indicator is imperfect.)

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
7. National Performance Measure 6 measures the percentage of Children with Special Health Care Needs (CSHCN) who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence. During fiscal year 2012, CCSHCN's data shows an indicator of 55.4%, which is down from 61.7% in fiscal year 2011. The data is derived from from an average of the following: (1) a query of the CCSHCN information system, which asks what percentage of CCSHCN patients 14-18 have plans for an adult health care provider; (2) data from responses to comment cards in which youths age 13-18 indicate that CCSHCN staff have discussed with them becoming as independent as possible; and (3) data from responses to comment cards in which youths age 13-18 indicate that CCSHCN staff have discussed with them getting the education or skills needed for a job.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
8. National Performance Measure 12 measures the percentage of Kentucky newborns who have been screened for hearing before hospital discharge. During fiscal year 2012, CCSHCN's data shows an indicator of 98.5%, which is up from 98.1% in fiscal year 2011. The data is derived from from statistics from the KY-CHILD information system used by birthing hospitals, and information from Kentucky's Office of Vital Statistics.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
9. State Performance Measure 7 measures progress toward the goal of a decreased percentage of CSHCN with BMI at/above 85th percentile. This is 1 of 2 state-chosen priority goals monitored over a 5-year period.

During fiscal year 2012, CCSHCN's data shows an indicator of 34.8%, which is down from 36.7% in fiscal year 2011. The data is derived from a query of the CCSHCN information system, which asks what percentage of CCSHCN patients 0-18 have a BMI at or above 85%, compared to the number of CCSHCN patients 0-18 who have had a BMI measurement.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
10. State Performance Measure 8 measures progress toward the goal of enhancing agency capacity to improve transition services, specifically, the degree to which the 13-point CCSHCN transition action plan is successfully completed and implemented. This is 1 of 2 state-chosen priority goals monitored over a 5-year period.

During fiscal year 2012, CCSHCN's data shows an indicator of 75%, which is up from 63.5% in fiscal year 2011. The data is derived from a committee's scoring on the 13-point CCSHCN transition action plan.

If you have any comments, reactions, or suggested edits/changes/additions to CCSHCN's draft narrative on this Performance Measure, please enter it here.
11. Please feel free to provide any overall/general constructive criticism you would like to share regarding CCSHCN's draft submission.