www.powerusa.org
Impact of Lipodystrophy on Quality of Life and Self Esteem
1. Page 1 (Two Pages)- THIS SURVEY IS ONLY FOR PEOPLE WITH HIV
50%
Page 1 of 2
1
. How old are you?
How old are you?
Under 15 years old
15-20
20-25
25-30
30-35
35-40
40-45
45-50
50-55
55-60
Over 60
2
. What is your ethinicity?
What is your ethinicity?
White
Black
Latino
Asian
American Indian
Other
3
. What is your gender?
What is your gender?
Female
Male
Transgender
4
. How long have you known that you are HIV positive?
How long have you known that you are HIV positive?
Under 5 years
5- 10 years
10-15 years
15-20 years
over 20 years
5
. Are you currently taking HIV medications?
Are you currently taking HIV medications?
Yes
No
6
. If you are taking or have taken medications for HIV, how long have you taken them (total years)?
If you are taking or have taken medications for HIV, how long have you taken them (total years)?
Under 5 years
5-10 years
10-15 years
15-20 years
7
. Have you taken any of these medications in the past?
Have you taken any of these medications in the past?
Zerit (D4T)
AZT
Crixivan
High dose Norvir
Hydroxyurea
DDI (videx)
DDC (Hivid)
8
. Have you had body shape changes after starting HIV medications in the past?
Have you had body shape changes after starting HIV medications in the past?
No
Yes
9
. What kind of body changes are you experiencing or have you experienced?
What kind of body changes are you experiencing or have you experienced?
Involuntary weight loss/wasting
Abdominal (Belly) Fat Gain
Facial Wasting
Butt Wasting
Veiny Legs or Arms
Increased Breast Size
Buffalo Hump (Behind The Neck)
Increased Neck Size
Parotid Gland Enlargement (sides of face)
Other
If other, please specify
10
. Have you experienced depression or anxiety due to the body changes?
Have you experienced depression or anxiety due to the body changes?
Yes
No
11
. Have you ever thought of killing yourself due to your body changes?
Have you ever thought of killing yourself due to your body changes?
Yes
No
12
. Have you ever thought about not taking your HIV medications or have you ever stopped taking them because of fear of worsening your body changes?
Have you ever thought about not taking your HIV medications or have you ever stopped taking them because of fear of worsening your body changes?
Yes
No
13
. Have the body changes cause you to: (check all that apply)
Have the body changes cause you to: (check all that apply)
Stop socializing and going out to meet people
Stop dating
Decrease sexual activity
Increase sexual activity
Worry too much about people finding out you are HIV+
Be rejected by potential sexual partners
Affect your job performance
Stop looking at yourself in the mirror
Change your clothing style
Abuse drugs or alcohol to feel better
Deplete your finances in search of a solution
Other
Please Specify
14
. What have you done to try to reverse your body changes? (check all that apply)
What have you done to try to reverse your body changes? (check all that apply)
Exercised more
Watch what I eat
Got my face injected with a filler or cosmetic product
Got my parotid glands treated with radiation
Took supplements that I heard may help my body fat/muscle
Used testosterone
Used human growth hormone
Used nandrolone (Deca durabolin)
Used Oxandrin
Got liposuction
Got butt implants
Use padded underwear
Other
If other, please specify
15
. Have your insurance, ADAP/Ryan White clinic, HMO, health care system (for countries outside the US) and/or supplier patient assistance program paid for ANY of the solution(s) mentioned in the answer(s) in the previous question? (Check all that apply)
Have your insurance, ADAP/Ryan White clinic, HMO, health care system (for countries outside the US) and/or supplier patient assistance program paid for ANY of the solution(s) mentioned in the answer(s) in the previous question? (Check all that apply)
No one has. I had to pay with my own money
Yes, my insurance company has
Yes, my HMO has
Yes, my ADAP/Ryan White program has
Yes, my country's health system has
Yes, a supplier's patient assistance program has
Please specify what was paid for
16
. Have you had facial wasting (lipoatrophy)?
Have you had facial wasting (lipoatrophy)?
Yes
No
17
. What option have you used to improve your facial lipoatrophy? (check all that apply)
What option have you used to improve your facial lipoatrophy? (check all that apply)
I have done nothing
I have used BioAlcamid
I have used silicone
I have used Sculptra (New Fill or polylactic acid)
I have used Radiesse
I have used PMMA in Rio, Tijuana or other
I have switched off from Zerit to Viread, Ziagen, Epzicom or Truvada
I have switched off from AZT to Viread, Ziagen, Epzicom, or Truvada
I have taken Uridine (Nucleomaxx)
Other
please specify
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