UK Personality Disorders Spectrum Survey

This survey is intended to capture indicative data about the Personality Disorders Spectrum (PDS) experience in the UK . It is primarily aimed at the experiences of Service Users who have had the following labels on their condition . Personality Disorder , Borderline Personality Disorder , Post Traumatic Stress Disorder , Complex PTSD , and Dissociative Identity Disorder. This survey is intended to be followed up depending on input from UK Services Users . It will also form a foundation for taking any concerns and directions generated, to the Care Quality Commission in the UK . It will also be shared with NALM (The National Association For LInks members) . The survey is independent of all bodies and created by Service Users in the UK. Entries on the survey by partcipants are anonymous.

Carers or advocates may complete the survey on behalf of a Service User.

1. Please indicate below which is the nearest age range you are in :

Please indicate below which is the nearest age range you are in : 10 to 20

21 to 30

31 to 40

41 to 50

51 to 60

61 to 70

71 to 80

81 and over

2. What is you gender :

What is you gender : Female

Male

Transgender

Other

3. Please indicate what mental health category or categories you have been labeled with in the Personality Disorders Spectrum (PDS) (you may choose more than one):

Please indicate what mental health category or categories you have been labeled with in the Personality Disorders Spectrum (PDS) (you may choose more than one): Personality Disorder

Borderline Personality Disorder

Post Traumatic Stress Disorder (PTSD)

Complex PTSD

Dissociative Identity Disorder

A mixture of these and others

4. Have you been offered a treatment for your PDS condition after you presented it to the NHS ?

Have you been offered a treatment for your PDS condition after you presented it to the NHS ? Yes

5. Have you been offered any of these treatments through the NHS for your PDS disorder

Have you been offered any of these treatments through the NHS for your PDS disorder Drug based treatment

Psychotherapy (based on revealing feelings and origins of your problems)

Cognitive Behaviour Therapy (based on looking at how you think about your feelings)

Counselling (based on allowing you to talk about yourself and problems and find your own solutions)

6. If you had any of these treatments did you find them helpful (you may answer in a mixture of ways)

If you had any of these treatments did you find them helpful (you may answer in a mixture of ways) I did not find drug treatment helpful

I did find drug treatment helpful

Sometimes I found drug treatment helpful

I did not find psychotherapy helpful

I did find psychotherapy helpful

Sometimes I found psychotherapy helpful

I did not find CBT helpful

I did find CBT helpful

Sometimes I found CBT helpful

I did not find counselling helpful

I did find counselling helpful

Sometimes I found counselling helpful

7. Please give the name of the NHS Hospital Trust where you have been dealt with for your PDS disorder(include the city name and/or town name or district)

Please give the name of the NHS Hospital Trust where you have been dealt with for your PDS disorder(include the city name and/or town name or district)

8. How many years have you been inside the NHS system with your problems and disorder (including any recoveries between relapses)

How many years have you been inside the NHS system with your problems and disorder (including any recoveries between relapses) 1 to 5 years

6 to 11 years

12 to 20 years

20 years and more

9. Would you like to see patients with Borderline and Personality Disorders (DID and PTSD) types of problems having their own personalised health budgets to use for therapy and supporting their lives to recover ?

Would you like to see patients with Borderline and Personality Disorders (DID and PTSD) types of problems having their own personalised health budgets to use for therapy and supporting their lives to recover ? No

Yes

I don't know

10. Have you found your experience with the NHS service supplies adequate for your needs?

Have you found your experience with the NHS service supplies adequate for your needs? Yes

Sometimes

11. What would you choose as a treatment and/or support to help your problem (briefly state)

What would you choose as a treatment and/or support to help your problem (briefly state)

12. If there are problems in your personal treatment/support experiences of the services locally to you, can you state what they are concisely?

If there are problems in your personal treatment/support experiences of the services locally to you, can you state what they are concisely?

13. Do you know what an NHS Care Plan Approach or C.P.A. is?

Do you know what an NHS Care Plan Approach or C.P.A. is? Yes

14. Do you have a "CPA" i.e. a Care Plan Approach designed with a Care Co-ordinator to meet your treatment and support needs?

Do you have a "CPA" i.e. a Care Plan Approach designed with a Care Co-ordinator to meet your treatment and support needs? Yes I have a CPA

I do not have a CPA

15. What problems do your PDS problems create in your life on a daily basis ?

What problems do your PDS problems create in your life on a daily basis ? I can work at a job but need supports to do so

I cannot work at a job my problems are too severe and I need supports

I can socialise but need supports to do so

I cannot socialise at all and I need support

I can socialise without support

I can work at a job without support

16. Do you have a designated Care Co-ordinator and a Care Plan Approach (CPA) that may take into account a crisis?

Do you have a designated Care Co-ordinator and a Care Plan Approach (CPA) that may take into account a crisis? Yes I do have a Care Co-ordinator and CPA that plans for any crisis

No I do not have a Care Co-ordinator and CPA that plans for any crisis

I do not need a crisis plan in my CPA

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