Oral Health survey |
Thank you for your interest in participating in our survey on caregivers' perceptions of oral health in individuals with developmental disabilities. Please read the consent form below and click "I consent" if you would like to continue with the survey.
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CONSENT TO PARTICIPATE
University at Buffalo Institutional Review Board (UBIRB)
Office of Research Compliance | Clinical and Translational Research Center Room 5018
875 Ellicott St. | Buffalo, NY 14203
UB Federalwide Assurance ID#: FWA00008824
Office of Research Compliance | Clinical and Translational Research Center Room 5018
875 Ellicott St. | Buffalo, NY 14203
UB Federalwide Assurance ID#: FWA00008824
Adult Consent to Participate in a Research Study
Title of research study: Caregiver’s Perceptions of Barriers and Facilitators to an Oral Health Routine for Individuals with Developmental Disabilities at Home and at the Dental Office
Version Date: 1/26/16
Investigator: Janice Tona, PhD, OTR
Why am I being invited to take part in a research study?
You are being invited to take part in a research study because you are a caregiver of an individual with a developmental disability.
What should I know about a research study?
Whether or not you take part is up to you. You can choose not to take part. Your decision will not be held against you. You can ask all the questions you want before you decide by contacting Dr. Janice Tona at (716)829-6741 (tona@buffalo.edu)
Who can I talk to?
If you have questions, concerns, or complaints, or think the research has hurt you, talk to the research team via Dr. Janice Tona at (716)829-6741 (tona@buffalo.edu).You may also contact the research participant advocate at 716-888-4845 or researchadvocate@buffalo.edu.
If you have questions, concerns, or complaints, or think the research has hurt you, talk to the research team via Dr. Janice Tona at (716)829-6741 (tona@buffalo.edu).You may also contact the research participant advocate at 716-888-4845 or researchadvocate@buffalo.edu.
This research has been reviewed and approved by an Institutional Review Board (“IRB”). You may talk to them at (716) 888-4888 or email ub-irb@buffalo.edu if:
-You have questions about your rights as a participant in this research
-Your questions, concerns, or complaints are not being answered by the research team
-You cannot reach the research team;You want to talk to someone besides the research team
-You want to get information or provide input about this research.
Why is this research being done?
This survey will explore the experience of caregivers in relation to oral health and dental care for individuals with developmental disabilities to identify what barriers and facilitators caregivers encounter at home when assisting with oral care, as well as when they are at the dental office. It will provide a springboard for future projects to create a toolkit for caregivers as well as dental care practitioners to develop a more accessible dental office and a more effective oral care routine at home.
How long will the research last?
We expect that you will be in this research study for 10-30 minutes.
How many people will be studied?
We expect about 100 people to participate in this research study.
What happens if I say yes, I want to be in this research?
If you agree to participate in this survey, you must click “I consent” at the end of this page. We will then ask you if you are a caregiver for an individual with a developmental disability a