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Clinical Datasets Relevant to FTD
1.
Select all that apply - Which of the following clinical databases do you use, or have used relevant to your work in FTD? Note: For now, we are focusing on clinical databases and not biorepositories.
ADNI
ADRC individual cohorts
ALLFTD dataset
ALSoD
AMP-AD Knowledge Portal
BioFIND
CALSNIC
DEMENTIA-SEQ
ENIGMA Consortium
FPI
GENFI
HRS
Irish Dementia Registry
NACC
NeuroBANK NEALS
NIAGADS
NYGC ALS Consortium
OASIS
PDBP, NINDS
PPMI
PRO-ACT
Project MinE
RiMod-FTD
Target ALS Data Engine
UK Biobank
Other (please specify)
2.
Have you been able to access needed data? Any issues with applying or receiving data?
3.
Which data are you most interested in? (e.g., imaging, surveys, fluid biomarker, etc)