Survey for ASAAP Parent Support Group

The ASAAP committee is dedicated about building awareness to South Asian families about autism.  We would like your help to better understand what information would have been helpful to you before and after your child's diagnosis.  It would be great if you could take a few minutes of your time to answer these survey questions.

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* 1. What were the first things you noticed about your child’s development that concerned you?

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* 2. Who did you discuss these concerns with and what eventually prompted you to seek help?  

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* 3. Looking back on the diagnostic process, what was the most difficult part for you? Could you share with us a time where you wish you understood the process better or wish you had extra help?

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* 4. Were there any road blocks in the way of getting a diagnosis? What do you think could have made that easier?

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* 5. What did you know about child development before your child was diagnosed? What information do you think should be out there for families so that they are aware?

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* 6. What kind of information would be helpful for you now to better understand your child, or to help your family understand your child?

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* 7. What kinds of services should AASAP be working on to support your family or other South Asian families?  

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* 8. Was attending the parent groups helpful for you?
If your answer is no, what could have made them more helpful?
If your answer is yes, what got in the way of coming to them?

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* 9. As a member of the South Asian community, what has been the most difficult thing in navigating the system to meet your child's needs or your family's needs?

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* 10. What according to you would be an effective way of building autism awareness among South Asian Families?

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* 11. How could we strengthen social support for South Asian Families with children diagnosed with Autism?

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* 12. Are there specific cultural barriers that we need to openly discuss to create more awareness?

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