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Thank you for taking the time to fill out this brief survey. for the Evans Syndrome Community Network (ESCN). We are using this as a jumping-off point for what will likely be a series of surveys in order to gather information about Evans Syndrome, the people who struggle with it, and their families.

If you are not a person with Evans Syndrome, or the parent of a child (under 18) with Evans Syndrome, please refrain from taking this survey.

This survey is meant for people currently living with Evan Syndrome. If you are the parent or family member of a person who had Evans Syndrome but that person is no longer living, please do not take this survey: There will be further surveys established to gather this type of information.

To contact us, please email ESCN@me.com.

* 1. Why are you taking this survey? *Please note that if you or not a person with Evan Syndrome or the parent of a minor child with Evans Syndrome, we respectfully request that you do not take this survey.

Going forward, questions will be phrased in such a way as if being asked of the person with Evans Syndrome, minor or adult. If you are the parent of a child with Evans Syndrome, please answer with your child's information.

* 2. Upon which continent were you (the person with Evans Syndrome) born?

* 3. Upon which continent do you (the person with Evans Syndrome) currently reside?

* 4. What sex are you (the person with Evans Syndrome)?

* 5. What range includes the year you (the person with Evans Syndrome) were born?

* 6. At what age were you (the person with Evans Syndrome) diagnosed with Evans Syndrome?

* 7. How long has it been since you (the person with Evans Syndrome) were diagnosed with Evans Syndrome?

* 8. How old were you (the person with Evans Syndrome) when you first showed signs of having problems with anemia (low hemoglobin count) or thrombocytopenia (low platelet count)?

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