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Registry Feedback Survey
1.
First Name (optional)
2.
Last Name (optional)
3.
Email Address (optional)
4.
How did you find out about the LFR?
5.
Please check any of the topics below that you feel may be useful in collecting for future surveys.
Symptoms
Treatments
Family History
Path to Diagnosis
Co-morbidities
Quality of Life
None of the above
Other (please specify)
6.
Are there any questions you would add to future surveys?
Yes
No
If yes, please use the space below to provide your questions.
7.
Are there any response options you would change/add to future surveys?
Yes
No
If yes, please describe the question and response option changes.
8.
Please give us your opinion regarding the length of the LFR Survey?
Too short
About the right length
Too long
9.
Please rate the ease of understanding the LFR Informed Consent?
1 star
2 stars
3 stars
4 stars
5 stars
Please leave us any comments regarding the Informed Consent.
10.
Please rate the ease of the Lipedema Foundation Registry platform, functionality and interface?
1 star
2 stars
3 stars
4 stars
5 stars
Please leave us any comments regarding our survey platform.
11.
Did you need to contact our support line for any technical issues?
Yes
No
If yes, please describe the issue you encountered and your experience in getting it resolved.
12.
Are you aware that the LFR has a
Registry Private Facebook group
to help with Registry-related issues?
Yes
No
Current Progress,
0 of 12 answered